Podcast by Rare Candy
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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
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We’re bringing you a slice of our lives through humor, tears, drama, games & pop culture, where trying to stay on topic is only half the fun! Join us!
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Parenting tools and life hacks for raising a child with a rare diagnosis. Let’s get to the meat of it!
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Welcome to the Dream Rare Podcast! An audio experience aiming to lift you up, make you laugh & help you get healthier all while bringing you some of the best news analysis on Earth.
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Fighting sarcoidosis as well as other rare diseases.
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Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind.
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This podcast is about rare and wonderful creatures that are at risk of disappearing and the amazing people working hard to save them! Have you ever wanted to know why they call the Loggerhead Shrike the Butcher Bird? Have you wondered where have all the bats gone? Or asked yourself what is being done to protect the creatures that can’t stand up for themselves? Well this is the podcast for you!
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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
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Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
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Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
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Wie denkt dat klimaatproblemen, feminisme of superrijken typisch dingen van nu zijn, heeft het mis. De Romeinen hadden er ook mee te maken. In de podcast Rare Jongens vertelt historicus Olivier Hekster (Radboud Universiteit) hoe de Romeinen omgingen met dingen waar we ook nu mee te maken hebben. Samen met Merijn Doggen (hoofdredacteur Universiteit van Nederland) bekijkt hij wekelijks onze tijd door de bril van de Romeinen. Met dank aan de Letteren Faculteit van de Radboud Universiteit
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This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
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Escape The World Thru MusiQ.
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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
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Continuous mixes of deep house, 90s hip hop and other groovy goodness...
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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Facts are facts if you would like to share your story or be apart of the podcast email me at [email protected]
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Conversations started by The Whitworth Group
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New Simplicity Channel. Robert Bonet's Music No Published
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Patient Empowerment Program: A Rare Disease Podcast
n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)
Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
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Funny in Spanish Cover art photo provided by Nahil Naseer on Unsplash: https://unsplash.com/@nahilnaseer
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Podcast by rarebirdlit
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Welcome to the VeryRarePodcast
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Every beginning carries within it the seed of its own destruction.
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Dive deep into the fascinating world of rare books with Rare Book Chat. Hosted by Michael DiRuggiero and Jeremy O'Connor, the co-founders of The Manhattan Rare Book Company, this twice-weekly podcast explores the unique and often valuable items that fill the world of rare books, manuscripts, letters, photographs, archives, and more. From historical documents to literary first editions, we'll discuss the stories behind these one-of-a-kind treasures. Join us as we explore the intricacies of th ...
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Funny and........ N O T H I N G
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Are you ready to transform your real estate business? The RARE Agent Show is your ultimate guide to closing more deals, building wealth, and thriving as a real estate professional. Hosted by Dylan Tanaka, a multi-award-winning Realtor and coach, this podcast is where top-performing agents share their secrets and strategies to help you achieve consistent closings without the stress. Each episode delivers actionable insights through two dynamic formats: •Exclusive Agent Interviews: Dive deep w ...
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Ever wonder what makes people take the leap and follow their dreams? That's what RareErth Podcast is all about. I sit down with folks who've turned their passions into careers, asking them the tough questions we all face. How'd they find the courage to start? What keeps them going? Whether it's artists, business owners, or creative thinkers, I'm chatting with people who've taken risks to do what they love. If you're looking for a little inspiration or just enjoy a good story, tune in. Learn ...
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The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders ...
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Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang telah usai. Support this podcast: https://podcasters.spotify.com/pod/show/heirare/support
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Two girls dropping gems in all areas of life! From your social to your personal life hopefully what we talk about can help you!
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Matt Condon and Jonathan Mann explore what it means to own things on the blockchain and beyond.
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Rare Treasures is a podcast all about rare conditions and disabilities. Each episode will focus on a rare disability or condition. We will gather information and statistics as well as interview people affected by the condition.
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"Medium Rare is a brand-new talk show podcast from the minds behind G33k P0p. Join us every fortnight for discussions of topics that we think are interesting, regardless of if it's what you want to hear"
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This is a podcast tutorial
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Welcome to Jacqueline Rare Antique (http://jacquelinestallone.com), the premier destination for antique collectors! Check Images: Jacqueline Rare antique Pin: https://www.pinterest.com/jacquelinerareantique/ FB: https://www.facebook.com/jacquelinerareantique/ TW: https://twitter.com/jacquelinerare Ins: https://www.instagram.com/jacquelinerareantique/
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Stories and Testimonies about 22Q11.2 and all rare and not so rare disorders and causes
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Lær mere om vin og vinens forunderlige verden mens du er på farten - dét er præmissen for denne, ikke helt traditionelle, podcast udgivet af RareWine Group. Vi har kombineret podcastformatet med det bedste fra lydbøger. Således kan du her finde vores yndlingsartikler og portrætter om de største producenter og de mest populære vinområder serveret i en række korte podcast-episoder, som du kan lytte til mens du er på farten. Bliv klogere på selveste Domaine de la Romanée-Conti, lær om hvorfor C ...
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A series of eclectic mixes from my vinyl record collection- check for regular updates and downloadable classics.
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The home of Schwarzenegger Watch Together, the podcast that chronologically critiques the career of actor, bodybuilder, politician and American hero Arnold Schwarzenegger, and other projects
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A platform that discuss current Topics as well as promote Upcoming Underground Artist And the #1 Goal is to Appreciate the “ REAL” because it’s Rare
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Forty Fivan is a San Francisco based DJ & record collector, highly regarded for his creative mixes, and deep collection of rare Brazilian vinyl.
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Entertainment jokes life real life
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Episode 506 - Allison Feenstra
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Allison Feenstra shares her transformative journey from being an active, independent young woman to navigating life with pulmonary hypertension (PH). She recounts how a sudden blackout led to hospital visits and the discovery of the condition, stemming from complications related to prolonged bed rest and birth control medication. Allison candidly d…
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Cassavetes w/ Darius Csiky
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Filmmaker and host of the 8pl8s podcast Darius Csiky joins Glen to discuss three films by John Cassavetes: Husbands (1970), The Killing of a Chinese Bookie (1978), and Love Streams (1984). Listen to 8pl8s https://open.spotify.com/show/3sBzkK9HGt6VyP4mB0zJ6qFollow Darius Csiky on Instagram https://www.instagram.com/8pl8s/?hl=enFor premium episodes o…
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155: An Interview With Rigoberto Garcia, Executive Director of the Hemophilia Foundation of Southern California
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rigoberto Garcia, executive director of the Hemophilia Foundation of Southern California, about the difficulty minorities—especially undocumented Hispanics—have in accessing treatment for their bleeding disorders.Rare Care Podcast
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Acromegaly With Risa From Colorado
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Send us a text Join me as I talk with Risa about her diagnosis with Acromegaly (A rare benign cancer). Learn about Risa's Symptoms and how she deals with her condition on a day to day basis. Risa decided shortly after having surgery to go on a 1845 mile bike ride from Colorado to Mexico despite her doctors advising against it. You can read more abo…
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P4A's 5 Top Trends for 2025
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Dive into P4A's annual appraisal of the year ahead. In this episode of Let's Talk Rare we examine the most important trends as identified and voted for by the P4A team. Ranging from Donald Trump's tariff impact on EU's ability to price orphan drugs to the change of mindset in HTA bodies to include patient experience data in their decision making ca…
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What Are Chances For RFK, Tulsi & Kash To Get Confirmed? Plus, Trump's Anti-Semitism EO Explained.
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Why will Tulsi Gabbard have the toughest road to confirmation? I explain it in today's podcast as well as a few other things. Hope you enjoy! All my links: https://DreamRareLinks.comAn0maly
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#333 - Dining At 7-Eleven
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#333 - Bad food choices. Into the FireDead Wife karma. All the president’s blood. Spoke update. FireAid Benefit Concert. The most forgettable actors.
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178: Jessica Fein’s Story |Adoption, a Progressive Disease, + The Illusion of Control
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When Jessica Fein’s daughter, Dalia, was diagnosed with a rare degenerative disease (MIRF syndrome) after a long diagnostic process, she was thrown into a world of medical uncertainty, impossible decisions, and the heartbreaking reality of watching Dalia’s abilities slowly fade. In this episode, Jessica shares her adoption story with Dalia, the amb…
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A Heart Attack that Led to a Rare Disease Diagnosis
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When Patty Keating had her thyroid removed, she experienced what she described as a “buzzing in her face,” had trouble sleeping, and felt anxious. Her symptoms grew worse and she had trouble climbing stairs. Then, six months later, her heart started racing, and her husband rushed her to the hospital, where tests showed she was having a heart attack…
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S3 EP3: OnlyFans Is My Secret Lover
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Send us a text Ready for a RAUNCHY good time!?! Join us as we dive into the world of our special guests only fans career where nothing goes unsaid, and no detail left unturned. Don't bring your virgin ears to THIS conversation!Rare Frequency
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014: Daily Safety Made Simple: 5 Key Safeguards for Home
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Essential Safeguards and Hacks for Parents of Children with Rare Diagnoses In this episode of Rare Meat for Moms, host Meghan Weaver shares practical tips for keeping children safe at home. Meghan details five key safeguards: (1) a freezer door alarm to prevent food spoilage, (2) a secondary lock on the main entrance to control access, (3) a Ring s…
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Episode 131| A well-designed and successfully conducted clinical trial with very clear negative results is the second-best outcome in drug development” to better reflect the overall message?
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Despite high hopes and promise from the drug Namilumab, Kinevant Sciences is reporting that the drug was not effective in treating Sarcoidosis. A well executed clinical trail showed that the drug simply didn't make a difference for sarcoidosis patients. In this episode of the FSR Sarc Fighter Podcast, two of the leaders at Kinevant join me to talk …
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5-years of n-Lorem: What Have We Learned?
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Five years of creating medicines, instilling hope, and overcoming steep challenges—all with the singular goal of improving the lives of nano-rare disease patients. Along the way, we’ve proven that WE CAN treat these patients safely and effectively, delivering significant benefit. But what else have we discovered throughout this journey? Thank you t…
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Case + Cass at tea, 2024Casey Greer and Cassandra Mendez
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God wants to bless us but sometimes we don't see or experience those blessings in our lives. Why is that? I trust this week's podcast will encourage you not to miss God's richest blessings. audreybroggi.com
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Million Dollar Shift: How Mike Turner Built Wealth Through Real Estate Market Changes | RARE Agent Show
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🎙️ What if you could turn market chaos into million-dollar opportunities? In this episode of The RARE Agent Show , Dylan Tanaka sits down with Mike Turner, a real estate powerhouse who has mastered the art of thriving in any market. From navigating the foreclosure crisis to creating lasting passive income streams, Mike shares insider tips that ever…
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Q&A met Olivier en Merijn over de Rare Jongens (BONUS)
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De Rare Jongens hebben afscheid genomen, maar we hebben nog een extra uitzending gemaakt. Daarin hoor je waarom we stopten, waarom er geen fluit zit in de muziek van Rare Jongens en wat we gaan doen met dit podcast-kanaal. Meer wetenschap kan je horen in de Universiteit van Nederland-podcast.
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ASN Update - Sparsentan Redefining IgAN Treatment
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In this episode of the Rare Kidney Disease Show, a panel of nephrology experts explore the latest data on sparsentan, as presented at ASN Kidney Week 2024. Dr. Hiddo Heerspink presents a post hoc analysis of the PROTECT trial comprised of patients who achieved complete proteinuria remission. Dr. Chee Kay Cheung shares interim data from the SPARTAN …
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Movie - The Phantom Carriage (1921)
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Part 4 of the Holiday Theme Time - January New YearIn today's episode, Mike picks The Phantom Carriage, a silent film to ring in the new year! Hosts Andrew, Rob, Eric, and Mike embark on a captivating journey back to the early days of cinema as they explore the 1921 Swedish silent film, "The Phantom Carriage." Join them as they unravel the film's p…
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