Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
…
continue reading
Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
…
continue reading
Welcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health professionals and advocates, we talk about all aspects of rare disease including relationships, mental health and much more. I cannot wait for you to hear some truly inspiring stories from some absolutely amazing people. From being diagnosed with a rare disease myself at 10 weeks old, it has given me the motivation to give ot ...
…
continue reading
I want to share information about living with and dealing with a chronic or invisible disease. This is made even more difficult if the disease is rare. I'll share my story and also invite some guests to share their viewpoints and experiences. There are hundreds of different types of diseases out there that are invisible and can the sufferer feel more alone. I'm hoping to help the patient, families and other support systems better communicate and empathize with each other. ***Disclaimer - Thi ...
…
continue reading
Fighting sarcoidosis as well as other rare diseases.
…
continue reading
Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
…
continue reading
1
The MS Poltergeist, feat. Patient Advocate Jennifer Angus
43:48
43:48
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
43:48
In this episode of the podcast we talk with Jennifer Angus, a patient advocate and para dressage competitor who was diagnosed with multiple sclerosis in 2014. Jennifer has long been involved with athletics having a history as a skiing instructor and is a big advocate of horseback riding as a way to heal the body and mind. Connect with Jennifer Rega…
…
continue reading
1
Unmet Needs in IgAN: Burden of Disease & Long-Term Impact on Patients ft. Dr. Jonathan Barratt : 2
15:44
15:44
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
15:44
Overview: In this episode of the Rare Kidney Disease Show, Professor Jonathan Barratt discusses the need to take a long-term approach when managing IgA nephropathy patients. He presents data from the UK National Registry of Rare Kidney Diseases (RaDaR). During this recording you will hear Professor Barratt discussing the continued risk of progressi…
…
continue reading
1
Physicians and Institutions Transform the Lives of Nano-rare Patients with Olivia Kim-McManus, M.D.
48:53
48:53
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
48:53
Research physicians and their associated institutions are monumental to the mission of the n-Lorem Foundation and are truly transformational to the lives of the nano-rare patients they treat. Olivia Kim-McManus, M.D., was one of four physician panelists at our first Colloquium who participated in "A Physician's Perspective on n-Lorem and Nano-rare"…
…
continue reading
1
Episode 112 | aTyr is getting closer to a new drug to fight sarcoidosis.
52:21
52:21
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
52:21
Joining me today on the FSr Sarc Fighter Podcast is Sanjay Shukla, CEO of aTyr Pharma. Sanjay returns to the podcast with a promising update on Efzofitimod, the most promising candidate to become the first drug developed specifically to fight sarcoidosis. Sanjay joins the podcast from Brazil, just one of the countries around the world, where the dr…
…
continue reading
1
The Bespoke Gene Therapy Consortium's New Regulatory Playbook, feat. The Foundation for the National Institutes of Health and Taylor's Tale
36:30
36:30
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
36:30
In this episode of the podcast we talk with Drs. Julie Gerberding and Courtney Silverthorn from the Foundation for the National Institutes of Health (FNIH). They're bringing us updates on the Bespoke Gene Therapy Consortium's new regulatory playbook that is designed to help get certain types of genetic therapies for rare diseases approved and avail…
…
continue reading
1
Episode 111 | Mathew Hall hits the wall with sarcoidosis. And it's Sarcoidosis Awareness Month!
1:03:20
1:03:20
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
1:03:20
Episode 111 is a special episode of the FSR Sarc Fighter podcast. It's sarcoidosis awareness month -- and the folks who are fighting for us at FSR want to get the word out. So Angela O'Malley and Cathi Davis join me for the show to talk about how they are working behind the scenes to get people to "Say Sarcoidosis." But also on the show is fellow s…
…
continue reading
1
Advanced Genetics Part 2
25:52
25:52
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
25:52
Genetics can be intricate, no doubt. With millions of mutations present in every human, one might wonder why not everyone is impacted by pathogenic diseases. The Patient Empowerment Program aims to assist you in grasping the fundamental concepts of various mutations and how they function, paving the way for you to enhance your understanding of gene…
…
continue reading
1
Episode 110 | Walgreens is helping to fight Sarcoidosis
34:40
34:40
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
34:40
In this Episode of the Sarc Fighter podcast, we learn how Walgreens is making Sarcoidosis a priority for its customers. Not only is Walgreens doing a fundraiser for the Foundation for Sarcoidosis Research -- the chain is talking about the disease and spreading the word that sarcoidosis is out there, that patients need help, and that the disease nee…
…
continue reading
1
Hemophilia and Axel's Story, feat. Patient Advocate Kristina Robinson
27:37
27:37
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
27:37
In this episode of the podcast we talk with Kristina Robinson, a patient advocate and mother whose son, Axel, was diagnosed with hemophilia A when he was 10 months old. That’s a rare bleeding disorder, sometimes called “classic hemophilia,” that is characterized by excessive bleeding from cuts, unexplained bruising, joint swelling and more. Since h…
…
continue reading
1
Advanced Genetics Part 1
30:13
30:13
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
30:13
Each time one of the cells in your body divides to form a new cell, 3 BILLION genetic letters must be accurately duplicated. That’s a big number and mistakes DO happen in everyone. That’s right, if you’re reading this, you have a genetic mutation. On This Episode We Discuss: Your genetic alphabet – nucleotides How to think about DNA Replication Typ…
…
continue reading
1
Getting Ahead of IgAN: A New Treatment Paradigm for Disease Control ft. Dr. Brad Rovin : 1
16:15
16:15
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
16:15
Overview: In this episode of the Rare Kidney Disease Show, Dr. Rovin, Professor of Internal Medicine and Pathology at Ohio State University and chair of the RKD Scientific Network and Podcast, discusses advances in the management of IgAN through a patient case study. “IgAN progresses more often than we thought and progresses even in patients with l…
…
continue reading
1
The Road to Resilience and Self-Advocacy, feat. Patient Advocate Kecia J.
38:13
38:13
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
38:13
This episode features Kecia Johnson, an author, music industry veteran and motivational speaker who was diagnosed with HIV/AIDS in her early 20s, and also with a rare form of stage-3 colorectal cancer at age 35. Kecia has been an outspoken patient advocate who has appeared in OutSmart Magazine, Shoutout Atlanta, many different podcasts and also a W…
…
continue reading
1
Episode 109 | Sarcoidosis has not been kind to Laura Runge-Gordon
1:33:09
1:33:09
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
1:33:09
In this episode of the FSr Sarc Fighter Podcast, Dr. Laura Runge-Gordon talks about how neurosarcoidosis crept into her life after years of misdiagnosis. She has seen every kind of complication you can imagine -- not to mention doing it all with a stressful job during the pandemic. Meanwhile, Royce Robertson returns with another ambitious fundraise…
…
continue reading
1
Sharing Hope Through Storytelling & Connection with Shanna Tolbert
43:08
43:08
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
43:08
What's one way to spread hope? By sharing your experiences and connecting with others who truly understand the everyday challenges nano-rare patients face. Shanna Tolbert was one of five nano-rare patient caregivers who participated in the panel, The Perilous Journey to Diagnosis and Treatment for Nano-rare Disease Patients. Listen to Shanna’s take…
…
continue reading
1
Episode 105 | Perry Montoya has traveled the world, but now he's on a new journey.
1:12:01
1:12:01
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
1:12:01
Perry Montoya is a travel writer and tour guide. He's led people through the holy sites around Jerusalem and understands the history of the Bible. Now he's learning to understand and cope with Sarcoidosis. Listen in as he details the demands of his disease including multiple organ involvement. Despite this setback, he remains optimistic and is look…
…
continue reading
1
Episode 107 | Mark Simbrowsky has a racing heart. Even when he's sitting still.
1:04:22
1:04:22
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
1:04:22
Mark Simbrowsky is a big-time runner. He runs marathons. But Sarcoidosis said, "Not so fast." Mark suffers from cardiac sarcoidosis. He went from being the fittest person in the room to a hospital bed, and nobody knew why. Now after a long journey, he is returning to his old form -- but it hasn't been easy. This episode of the Sarc Fighter Podcast …
…
continue reading
1
Rare Cancer, Finances and Families, feat. Tony Laudadio of the Tony Foundation
48:39
48:39
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
48:39
In this episode of the podcast, we speak with Tony Laudadio, an oncology patient advocate who was diagnosed with renal cell carcinoma and oligodendroglioma, a type of rare brain cancer. In the years after his remission, Tony also started the Tony Foundation, a non-profit that helps to support families impacted by all types of cancers with crucial f…
…
continue reading
1
Our Mission is Personal with Sarah Glass
40:54
40:54
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
40:54
For n-Lorem’s Chief Operating Officer, Sarah Glass, the mission of n-Lorem is personal. Her son Ethan was diagnosed with a nano-rare mutation. A geneticist by training, she joined n-Lorem to oversee and direct the organization’s efforts to provide hope and potential help to those who need it most. It's more than just a job for her; she's powered by…
…
continue reading
1
Episode 106 | Rachelle DeMaria just wants to launch her life
1:02:16
1:02:16
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
1:02:16
Rachelle DeMaria lives in Colorado Springs, where the scenery is beautiful and as they say, life is worth living. Rachelle had just finished cosmetology school and was getting ready to open her business. Then one day something in her back didn't feel right. After exhaustive testing doctors diagnosed her with Sarcoidosis. Her diagnosis came at the h…
…
continue reading
1
The Unmet Need in Rare Disease, feat. Dr. Emil Kakkis of Ultragenyx
25:12
25:12
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
25:12
In this episode, we speak with Dr. Emil Kakkis, a physician and scientist who has spent more than 30 years helping to advance research, treatment and policy for rare disease patients. He is also the founder of both the EveryLife Foundation for Rare Diseases and Ultragenyx, a life sciences company dedicated to developing innovative treatments for ra…
…
continue reading
1
Q&A #2 with Patient Families
45:45
45:45
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
45:45
Charissa Lipman joins n-Lorem founder and CEO, and host of the Patient Empowerment Program Podcast, Dr. Stan Crooke, in this question-and-answer episode to discuss additional questions asked during the 2023 Nano-rare Patient Colloquium. Charissa attended the inaugural Colloquium in October 2023 and brings the perspective of a patient family member,…
…
continue reading
1
Everybody Lives with Dan Doctoroff
48:37
48:37
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
48:37
We're diving into the archives to resurface this top downloaded episode from last year. Dan Doctoroff joined Patient Empowerment Program in February 2023 to talk about his mission to support a world where everyone with ALS lives. Dan is the former NYC deputy mayor for economics and former CEO of both Bloomberg L.P. and Sidewalk Labs. In this episod…
…
continue reading
1
The Intersection of Motherhood and Chronic Illness, Feat. aHUS Patient Advocate Taylor Coffman
43:28
43:28
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
43:28
On this episode of the podcast, we discuss atypical hemolytic-uremic syndrome, also known as aHUS -- a rare disorder characterized by low levels of blood platelets and blood clotting in the small blood vessels of the body. We're joined by Taylor Coffman, whose diagnosis with aHUS during pregnancy inspired her to work as a patient advocate helping t…
…
continue reading
1
Episode 104 | John Martin thought it was time to get his affairs in order.
51:21
51:21
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
51:21
In episode 104 of the FSR Sarc Fighter Podcast, John Martin talks about how a routine trip to the doctor stopped him in his tracks. As is often the case is was a sarcoidosis related misdiagnosis. The good news is that he does not have cancer as his doctor suspected. On the other hand, sarcoidosis has dealt him a few setbacks and he must now live li…
…
continue reading
1
Best of the 2023 Nano-rare Patient Colloquium
39:02
39:02
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
39:02
For the return of the patient empowerment program podcast, we’re recapping the 2023 Nano-rare Patient Colloquium in this special “Best of” episode. For the Colloquium, we gathered the nano-rare community under one single roof for a full day of presentations and panels with experts, partners, supporters, and patients. So, we are bringing some of the…
…
continue reading
1
Episode 103 | Closure. Why we need it and why sarcoidosis won’t give it to us.
59:29
59:29
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
59:29
Happy New Year from the Sarc Fighter Podcast. To start the year off, I have a look at a psychological concept called the Zeigarnic effect. Don't worry about the big name, it will all make sense when you listen. But it has to do with how your brain discards information it no longer needs to free up room to process other thoughts. By doing this, it h…
…
continue reading
1
Episode 102a | Sherron Fantauzzi Is fighting the good fight.
1:07:11
1:07:11
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
1:07:11
Sherron Fantauzzi knew something was wrong with her body. After months of aligning the clues, doctors discovered it was sarcoidosis. In Episode 102 of the FSR Sarc fighter podcast, Sherron brings her upbeat personality to the mic and talks about how she has balanced a job with the FAA, a local talk show, being a basketball referee, and sarcoidosis.…
…
continue reading
1
How to Think About "Risk" Part 2
35:28
35:28
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
35:28
Nano-rare diseases strip power from families and this often leads to hopelessness, anger, and dread. However, channeling these intense emotions to carefully navigate risk/benefit decisions is within one’s control. n-Lorem is different than standard drug development settings. Every risk/benefit decision that n-Lorem makes is in the context of the in…
…
continue reading
1
Episode 102 | Sherron Fantauzzi Is fighting the good fight.
1:07:46
1:07:46
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
1:07:46
Sherron Fantauzzi knew something was wrong with her body. After months of aligning the clues, doctors discovered it was sarcoidosis. In Episode 102 of the FSR Sarc fighter podcast, Sherron brings her upbeat personality to the mic and talks about how she has balanced a job with the FAA, a local talk show, being a basketball referee, and sarcoidosis.…
…
continue reading
1
How to Think About "Risk" Part 1
42:35
42:35
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
42:35
“How to Think About Risk” is arguably the most crucial topic ever discussed on the Patient Empowerment Program. Navigating decisions with substantial risk can be challenging, intricate, and even intimidating. The ability to detach from the intense emotions surrounding these choices is critical for making the best and most logical decisions. On This…
…
continue reading
1
Inheriting Huntington's Disease and Aspiring to Prolong Lives with Jeff Carroll
38:43
38:43
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
38:43
Jeff Carroll, Ph.D., inherited a gene that will eventually lead to symptoms of Huntington’s Disease. Alongside researching this debilitating disease as an Associate Professor of Neurology at the University of Washington, he’s a Scientific Advisor for n-Lorem and member of the Access to Treatment Committee (ATTC) that helps screen and assess submitt…
…
continue reading
1
Going All In On Support, feat. Patient Advocates Kathi and Dave Herzog
24:26
24:26
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
24:26
In observance of Alzheimer's Disease Awareness month, we sit down with patient advocate Kathi Herzog -- who was diagnosed with moderate Alzheimer's earlier this year. While not a rare condition, Alzheimer's research has informed the search for treatments in rare neurodegenerative conditions and Kathi's journey to diagosis will probably sound very f…
…
continue reading
1
Episode 101 | Andy Lacher has sarcoidosis in his lungs and his heart. Put he’s pushing on.
48:43
48:43
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
48:43
Andy Lacher knew something wasn't right when his heart rate wasn't right on a bike ride with his wife. It was the beginning of a year of doctor's visits until the ultimate diagnosis of sarcoidosis. Show Notes: Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/ Become a community outreach leader: ht…
…
continue reading
1
Learn About NMOSD feat. Patient Advocates Dr. Maggie Kang and Nell Choi
25:27
25:27
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
25:27
In this episode of the podcast we discuss neuromyelitis optica spectrum disease (NMOSD), a rare autoimmune disease that effects central nervous system function and can result in symptoms such as pain, vision loss, limb weakness and numbness. Joining us are Dr. Maggie Kang and Nell Choi, mother and daughter patient advocates who talk about NMOSD and…
…
continue reading
1
Living a Longer, Healthier, and More Fun Life with Chip Wilson
1:00:16
1:00:16
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
1:00:16
Chip Wilson, the creator of Lululemon and SOLVE FSHD, stands as a pioneer, business innovator, philanthropist, and a person affected by a rare disease. His passion for fitness led him to build a successful career in designing athletic wear, but a diagnosis of Facioscapulohumeral Muscular Dystrophy (FSHD), a degenerative muscle condition, altered hi…
…
continue reading
1
Episode 100 | John Mockovciak is a caregiver and philospher when it comes to Sarcoidosis
1:10:45
1:10:45
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
1:10:45
John Mockovciak spends a lot of time helping his wife, Janet travel her sarcoidosis journey. And for a couple who hike and ski and seek the lifestyle they've always wanted, it can be a lot of work for both of them. Yet somehow they get down the mountains in the snow, and to the iconic places so many people want to visit. But it takes a certain mind…
…
continue reading
1
Building Equity in the Breast Cancer Community, feat. Jasmine Souers of the Missing Pink Breast Cancer Alliance
24:23
24:23
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
24:23
For Breast Cancer Awareness month, in this episode we're speaking with Jasmine Souers, the president and CEO of the Missing Pink Breast Cancer Alliance about some topics that aren't often covered in mainstream oncology. We discuss the individual genotypes, treatment factors and other considerations that make each case of breast cancer a "rare" expe…
…
continue reading
1
Episode 99 | How to meet NY Yankees great Bernie Williams, and FSR’s Manny Lozano on the power of the sarcoidosis community
1:10:46
1:10:46
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
1:10:46
In Episode 99 of the FSR Sarc Fighter podcast, we learn Yankees great Bernie Williams is using his remarkable talent as a musician to help people with Sarcoidosis. We also meet Manny Lozano who is in charge of building the sarcoidosis community through FSR. Manny spent more than 20 years in the Navy including some heavy duty tours. Now he brings th…
…
continue reading
1
Autopilot: The Autonomic Nervous System
22:04
22:04
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
22:04
The Autonomic Nervous System automatically controls essential processes whether you’re awake or asleep. It’s the employee of the month. It gets the job done at any time of the day without you even having to ask it. It is our body’s autopilot system, controlling functions we often take for granted, like heart rate, digestion, pupil dilation, and eve…
…
continue reading
Patient Worthy's award-winning podcast is back! In this episode, we discuss Von Hippel-Lindau Disease. That's a genetic condition that causes constant tumor growth, commonly in the eyes, spine, brain and kidneys. Patient advocate Justin Corbin shares his diagnosis and treatment journey, which stretches from the 1990s today. Read more about Justin's…
…
continue reading
1
Episode 98 | Dr. Nancy Lin is looking deep in our cells to find a way to diagnose Sarcoidosis
59:09
59:09
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
59:09
Dr. Nancy Lin at Johns Hopkins is working on a way to quickly diagnose Sarcoidosis - at last compared to the current ways it is being done. She is looking at our micro RNA to see if there is something different in sarcoidosis patients. Her research is being funded by a $150,000 grant from the Foundation for Sarcoidosis Research. Not only does it ap…
…
continue reading
1
Better Health, Brighter Future for Rare with Dan Curran
29:52
29:52
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
29:52
Dr. Daniel Curran leads Takeda’s efforts to unlock innovation and deliver transformative medicines in a variety of rare-disease areas. Dan embraces learning from, collaborating with, and meeting members of the rare disease community in an effort to produce treatments that result in better health and a brighter future for rare. 2:02 How rare disease…
…
continue reading
1
Episode 97 | Joel Rosen is fighting sarcoidosis and fighting for you at the same time.
44:13
44:13
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
44:13
Attorney Joel Rosen woke up one day and he wasn't feeling well. He thought maybe it was a cold. But he just couldn't get to feeling better. That sent him through a series of tests that eventually led to a diagnosis of sarcoidosis. As an attorney, he had already generously loaned his talents to several non-profits. And now we can add the Foundation …
…
continue reading
1
Sneak Peek of the 2023 Nano-rare Patient Colloquium
36:04
36:04
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
36:04
As the first ever Nano-rare Patient Colloquium is just around the corner, we are flipping the script. Spectrum News’ Brady Huggett interviews n-Lorem founder and CEO, Dr. Stan Crooke, and picks his mind to understand the inspiration behind the creation and want for this first of its kind nano-rare community event. Along with some background informa…
…
continue reading
1
Episode 96 | How effective is methotrexate? And Royce braves the miles and the weather for your cause!
38:34
38:34
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
38:34
In Episode 96 of the FSR Sarc Fighter Podcast, fellow Sarc Fighter Royce Robertson returns to talk about his epic adventure while raising money for the cause. Meanwhile a small study in Japan suggests methotrexate may not be the answer for some Cardiac Sarcoidosis patients. Show Notes www.kinevant.com www.sarcoidosistrial.com Click here for informa…
…
continue reading
1
Episode 95 | FSR awards Dr. Christen Vagts $150,000 for critical research, and John puts his sarcoidosis in perspective.
41:21
41:21
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
41:21
Show Notes More on aTyr Pharma: https://atyrpharma.com/ Participate in the aTyr Clinical Trial: https://bit.ly/3EUOxNq More on the Efzofitimod study: https://sarcoidosisnews.com/news/benefits-seen-efzofitimod-pulmonary-sarcoidosis-treatment-trial/ Episode 77 interview with Dr. Christen Vagts https://beatsarc.podbean.com/e/episode-77-covid-vaccines-…
…
continue reading
Liver disease is a broad term encompassing a range of conditions that affect the liver's structure and function. The liver is extremely important as it wears many different hats when it comes to your body functioning properly like controlling metabolism, storing and breaking down nutrients for use, detoxification and more! No wonder there are many …
…
continue reading
1
Episode 94 | Tony Haskel returns to the podcast after a rough few months. And do pulmonary Sarc patients get a fair shake at transplant time?
55:23
55:23
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
55:23
Tony Haskel first appeared on the podcast in March of 2023 - about five months prior to this recording. At the time he knew he had sarcoidosis, but he didn't really know what was in store. Now, months later he is much better acquainted with sarc, but still has an optimistic outlook. Show Notes www.kinevant.com www.sarcoidosistrial.com Click here fo…
…
continue reading
1
Liver: The Master Chemist
20:23
20:23
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
20:23
The liver is a master chemist that sends copious signals to help control our appetite and breaks down fats to be stored and used as energy and to combat starvation. Next time you’re hangry, think of your liver kicking into overdrive. On This Episode We Discuss: Producing countless small chemical metabolites Controlling iron homeostasis The liver an…
…
continue reading
1
Episode 93 | John tests his Sarcoidosis on assignemt on the U.S.- Mexico border with the National Guard.
43:37
43:37
Прослушать позже
Прослушать позже
Списки
Нравится
Нравится
43:37
In this episode of the FSR Sarc Fighter Podcast, I tested my health as I was embedded with the National Guard, patrolling the U.S. - Mexico border at Eagle Pass, Texas. Temperatures soared up to 103 degrees, as I worked to report on the battle between migrants wanting to cross into the United States, and authorities who want them to come through le…
…
continue reading