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Brain Cancer Podcast
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Brain Cancer Podcast

Brain Cancer Podcast

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My name is Chris. I am a 6 year+ glioblastoma survivor. This podcast is for anyone impacted by a brain cancer diagnosis. The amount of new terminology you‘ll hear is overwhelming. My goal is to break down and explain some of that terminology into easy episodes you can listen to on the go. I also share patient and caregiver experiences, do interviews and give regular updates on my personal treatments. Everyone is welcome here. No one should have to go through this by themselves.
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Hello! This is a quick one but I wanted to make an episode for hitting and surpassing the seven year mark on this brain cancer journey we've been on. Of course there are ups and downs with good and bad days. However, we are still going! It was such a hectic and tiring summer but I feel like I'm back on track and just about to start on a new trial d…
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Hello! I wanted to create this episode for Glioblastoma Awareness Day 2023 to add to the various articles and stories you hear from GBM patients. Whether as a patient or a caregiver, this disease is horrible. We've lost some true greats to this disease. And I don't necessarily mean "famous" people although we have lost them as well. Parents, siblin…
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Hello! Sorry for the gap in episodes but it's been a hectic few weeks with work, spring garden prep and planting, taking my photo walks, and general hospital visits and treatments that have kept me behind on so much. But, this is one I was really excited to record and I've already set aside time to record our next episode which is very relevant to …
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Well hello and thank you for listening today! It's been two years since my second craniotomy for a small recurrence of my brain tumor. I cannot believe that it's been two years already! I just wanted to share how I felt back then and how I'm feeling today while still going through my own treatments. I have to apologize for not getting everything I …
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Hello! This is just a short episode talking about Brain Tumor Awareness Month here in May 2023. I just started talking and just went with what I was feeling. Not exactly a structured episode but sometimes I like to just talk. And thank you for letting me talk. This is a show for all of us and it really acts as a bit of therapy for myself as well. S…
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Hello! I am so sorry for the delay between episodes! I also did not realize I already did an episode about MRIs but I'm not going to waste a recording I made. Maybe it can help someone and that's all I want. It's been a very hectic few months and I'll be doing an update. Don't worry, I am still going and our journey continues! I was also at work a …
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Hello! I'm sorry for the delay and I'm getting caught up on things. Normally, I should have more time but I've been busy with so many things and I wanted to record. This is just a short personal update and I also felt like I wanted to talk about some of the things we as brain cancer patients and caregivers hear both online and in real life. I want …
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Hello and welcome! In this episode, we go over the latest step in my current treatment and discuss what lomustine is, potential side effects, and a story of how much control some companies have over our treatments. I'm sorry for the slight delay in releasing this episode. I've been working, going to appointments, and my voice has been pretty rough …
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Hello and happy holidays!! As we head into 2023, I wanted to do a little recap of 2022 and talk about some plans for the next year. I'm really excited to see what we have in store next year. Thank you all so much for all of your support during these 6 years! I am so thankful to have you all in my life. Make sure you give the show a follow on your p…
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Hello! I figured that a new year would be a good time to update our trailer since I made the original one quite some time ago. It's just a 1 minute trailer and I tried to fit what the show is and the purpose all within a minute. I wanted to keep it in that general range so that more people can hear a quick trailer and tune in. Be sure to share it a…
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Hello! This is the 3rd year of our Thanksgiving episode series. I have a feeling we will have a few more years of these :) I also give a quick update as to how I'm feeling after radiation. This is being uploaded a couple days after Thanksgiving but it was a hectic few days. I'll be sure to do at least some posts on the Facebook page at Facebook.com…
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Hello! Thank you for stopping by for a quick update on how this short, ten day radiation therapy has been going. It is highly targeted and I always want to share how I am doing as well. I will definitely be doing an update after day 10 and throughout the coming months I'll let you all know how I'm doing. I'm still working on mic placement and how f…
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Hello! Lots going on and I wanted to give you all an update on how I have been. It's been a very hectic few weeks and I wanted to give you all a bit of a recap on things. I've actually already recorded another short update after finishing this one so stay tuned for the next one! Thank you all so much! I decided to get one more upgrade for our show …
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Hello! I have officially hit 6 years since I was diagnosed with glioblastoma in September of 2016. It's a bit of a time of reflection for me. How far I have come and the people I have encountered along the way. I just wanted to say thank you. I cannot put into words how much you have changed my life. I could not ask for better people! Chris…
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Hello! I just wanted to sit down and have a chat about dexamethasone. This is one of the episodes I had been wanting to make for a while. Many of us will experience this drug at some point. It's important to understand its side effects and how it can work against the very idea of immunotherapy. Many of us in the community have felt those side effec…
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Hello! This is our episode where we look back on just a few of the many brain cancer studies and articles over the month of July, 2022. I really enjoy doing these and it's a good way to see how many new therapies are being pursued around the world! Thank you all so much for listening and please follow the page and Facebook at Facebook.com/braincanc…
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Hello! Across the United States, July 20th is recognized as national glioblastoma awareness day and I wanted to release a short episode talking about some of my feelings and how much all of YOU mean to me. But honestly, all brain tumors are dangerous. GBM is certainly not the only very aggressive tumor type. While it's not the longest episode, I wa…
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Hello! Thank you for tuning in to our monthly news recap! I read some very interesting articles this month with a focus on both DIPG and GBM as they are both diffuse, difficult-to-treat tumors. I didn't realize that this episode went longer than usual and I considered cutting an article out but I've included time stamps down below with a link to ea…
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Hello! Thank you all for tuning in! I'm sorry this episode took me a little longer to edit because it was a very hectic few weeks! I just wanted to talk about some of the things you may have to complete before a craniotomy as well as what it is like when you wake up and how the following few weeks are after you get home! I've got a couple links at …
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Hello!!! Thank you all so much for tuning in! It's that time where we look back at a few of the new studies and stories of the past month. I've got some good ideas for some upcoming episodes as well. Please feel free to reach out for any reason and make suggestions or provide feedback. I really enjoy doing these and you all are the reason I love do…
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Hello! I just wanted to say thank you. I just needed to sit down and talk to you all after being 1 year out from my second resection surgery and some of the conflicts that are going through my head. I know I am not alone in this feeling and I hope that it can help. You are all amazing. All around the world! Chris…
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Hello! Thank you so much for tuning in and sharing your time with me! In this episode, we cover some of the latest news and research in the world of brain cancer. I really enjoy doing these monthly updates because the research and studies are constantly evolving. As usual, links are posted below for you to reference if you would like. I appreciate …
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Hello! Thank you all so much for listening! I wanted to make a general episode discussing what an MRI is used for and how my typical scan works. I didn't want to turn it into a technical episode because for us, the images are the important part. My voice wasn't cooperating as much because I didn't drink enough water prior to recording and I hope it…
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Hello! Thank you all so much for tuning in! I had some great feedback on the monthly news updates and I hope I can do about 1 per month to just recap the newest meds and treatments that keep expanding our options. I also just wanted to talk at the end about how I personally have been doing. You all are amazing and I can't say how much I appreciate …
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Hello! First off, thank you so much for tuning in! I wanted to do a short recap/update on the CNS tumor changes introduced in the back half of last year. I tried my best but it is still hard and my voice didn't want to cooperate either. I'll be doing another update/chat type episode soon as I have a few things beyond my personal update that I want …
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Hello! Thank you for tuning in! In this episode, I wanted to just review and talk about some of the more recent news I've seen in the brain cancer world. We are seeing many advances in treatment now that people will have more options than ever before. This means longer, happier lives in our mission to eliminate brain cancer. I hope to do this month…
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Hello! Thank you all so much for taking the time to listen to me! I did have a difficult time with making that episode and I think I can hear it in my voice. However, I tried my best and wanted to cover what I think we all know is an important topic. Cancer or not. I appreciate you all so much for your support and questions. Never hesitate to reach…
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Hello! Thank you all for tuning in! I really wanted to do another episode talking about the importance of mental health care combined with a brain cancer diagnosis. These past two years have been a challenge for all of us. This episode might sound a little bit all over, but I was just talking about how I felt and what has helped me in my own life. …
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Hello! I hope you all enjoy this short episode talking about a couple diets that could possibly hold promise to supplementing your standard brain cancer treatment. As I mention in the episode, always talk to your doctor about dietary changes and it can be beneficial to also speak with the nutritionist. I've included some links below so you can get …
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Hello! I wanted to get this episode out before I leave town for a few days for the whole holiday season. I wanted to make an episode about some of the most common types of surgery that happen in the world of brain tumors. If any of you would like a more thorough episode dedicated to newer surgical procedures like robot-assisted surgery, micro surge…
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Happy Thanksgiving. I think it's important that we all take a minute to think about the things we are thankful for. I am thankful for you. Without you, we wouldn't have a show! Every one of you is special and you should feel loved, because you are. You are the reason why we will keep this thing going! It does not matter if your country doesn't cele…
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Hello, everyone! I hope you all had a wonderful Halloween as we head into November! This is an episode I had recorded a while ago and finally finished! I hope the audio sounds ok. I've since improved my recording area with some additional acoustic foam panels. I tried to give a quick breakdown on various types of immunotherapy. I should be recordin…
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Hello! It's been exactly 5 years since my surgery and diagnosis of a glioblastoma. So, I sat down the other night and just wanted to talk. In these 5 years, I've become a better person. Someone that I knew I could be but it took a life changing diagnosis to bring it out. I know who I am. While I still can, I want to help as many people as I can and…
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Hello! First, I'm so sorry for the absence. It's been a hectic few months to say the least. I get into it this episode but I'm back on track and have a list written up of topics to cover. Also, if you want to tell your story, just email me and we can coordinate something over Discord, Zoom, or whatever works. I handle all of the audio recording on …
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I meant to get this out faster but had a couple things keeping me always a day behind. The next episode is already halfway through the editing process. I'm actually going to be switching over to Audacity 3.0.2 but I had started editing on the older version. So, I don't think there are many major changes but I will do some shorter episodes as well a…
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Hello, everyone! I just wanted to turn my recorder on and talk into my mic for a little bit. It's just me talking about a few things going on in my life. I needed to talk and you all are awesome! I know I can count on you. Yes you, reading this! The next episode has been recorded and I need to get started on editing it. I'm going to try to get it d…
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Hello! I hope you are all doing well! I explain why I wasn't recording for a few weeks and I am so sorry! This episode took me around 5 or 6 days to finally finish editing and get posted. I have no idea what happened during my recording, but possibly one of my fans kicked on and I had ridiculous amounts of junk noise to remove in post. I did 2 pass…
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Hello! I'm so sorry for the lack of shows the past 2-3 weeks. It's been a very busy, stressful and overall not great week but I've tried to get myself right because I was able to take some fairly nice walks outside a few days ago. I just wanted to share how my day at the hospital went and to just sit down and talk through how I've been feeling. It …
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Hello! I hope you're all doing well! I just wanted to make an episode addressing mental health in the brain cancer community. It has been a difficult year for all of us. Having to deal with the pandemic and shutdown while still going through our own care. I had planned on putting this out a few days ago but a combination of things meant that it too…
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Hello, everyone! I hope you're all doing well. This is just a quick update episode on how my day at the hospital went. I have to apologize for the audio quality being a bit bad. I was tired and definitely a little dehydrated. I usually drink plenty of water before recording anything but I definitely didn't do all of my normal things before sitting …
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Hello! Thank you for tuning in! In this episode, we have a great interview with my friend Stephen who lives in Dublin, Ireland. He takes us along as he explains how his stable life was suddenly flipped upside down. He talks about his surgery, recovery, and treatment. In addition, we cover some of his post radiation side effects and how he has found…
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I just wanted to update everyone on how my appointments went, along with the results of my MRI! I mentioned the upcoming changes for brain tumor classification system. The episode I referenced is this one: https://braincancerpodcast.podbean.com/e/episode-6-idh-mgmt-explained/ I hope that you are all doing well and feel free to contact me for anythi…
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Let's kick off 2021 with listening to Paddy from Ireland who was kind enough to come onto the show and share his journey with a brain tumor. He talks about how he noticed the gradual changes which led to the tumor being discovered, the treatment he received, and how having the tumor has changed his life. We also briefly discuss some of the differen…
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First thing. From the bottom of my heart, thank you all so much for the support you have shown me since I started this in March 2020. I've had a great time doing this and learning as I go. I promise that I won't stop learning and trying to improve each time. I've met some amazing people and I get excited every time I hear from someone. It might sou…
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First off, I want to apologize for some of the audio in this episode. I didn't realize that my mic was picking up every tiny noise and I eliminated as much as I could. I'm going to be a bit more observant and drink extra water next time as well. Thank you for understanding. I wanted to briefly run down what the prep work before starting radiation t…
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Hello! This is just a short update after my day at the hospital on Friday, December 18th! I was trying some different EQ settings and I'm still trying to find what sounds level and not too bad. Thank you so much for tuning in. I'm going to be recording again very soon as well as making an episode outlining some of my goals for 2021. This past year …
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I just wanted to say happy Thanksgiving to all of you out there! I'm so thankful for each and every one of you and how you have made such a positive impact on my life! No matter where you are in the world, Thanksgiving or not, tell someone "thank you" today. Reach out to someone, tell someone who has helped you in any way. This doesn't need to be a…
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Hello! I just wanted to update everybody after my MRI and treatment. I was hoping to record today but due to a whole lot of noise from outside, I have a massive headache and I will try to tomorrow! Unless, the same thing happens again. Which, does seem likely. Thank you all so much for your support! I also posted the link to the BPM which is my go-…
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Hello! Thank you all for taking the time to listen to the episode! In this episode, we go over some of the more common medications you'll hear about when dealing with a brain tumor diagnosis. Please check out the links provided below for additional information. Feel free to contact me for anything you need at Braincancerpodcast@Gmail.com Links from…
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Hello! I just wanted to make my update episode from my day getting my infusion at the hospital today. It turned into quite a long day, but it could always be worse! The next episode has already been recorded and will be out soon! Thank you so much, everybody! ChrisBrain Cancer Podcast
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