ISTAART Relay Podcast - Lewy Body Dementias PIA

Dementia Researcher

#Dementia Researcher #National Institute for Health Research #Science

26:18

How do you know when it’s time to make your next big career move? With International Women’s Day around the corner, we are excited to feature Avni Patel Thompson, Founder and CEO of Milo. Avni is building technology that directly supports the often overlooked emotional and logistical labor that falls on parents—especially women. Milo is an AI assistant designed to help families manage that invisible load more efficiently. In this episode, Avni shares her journey from studying chemistry to holding leadership roles at global brands like Adidas and Starbucks, to launching her own ventures. She discusses how she approaches career transitions, the importance of unpleasant experiences, and why she’s focused on making everyday life easier for parents. [01:26] Avni's University Days and Early Career [04:36] Non-Linear Career Paths [05:16] Pursuing Steep Learning Curves [11:51] Entrepreneurship and Safety Nets [15:22] Lived Experiences and Milo [19:55] Avni’s In Her Ellement Moment [20:03] Reflections Links: Avni Patel Thompson on LinkedIn Suchi Srinivasan on LinkedIn Kamila Rakhimova on LinkedIn Ipsos report on the future of parenting About In Her Ellement: In Her Ellement highlights the women and allies leading the charge in digital, business, and technology innovation. Through engaging conversations, the podcast explores their journeys—celebrating successes and acknowledging the balance between work and family. Most importantly, it asks: when was the moment you realized you hadn’t just arrived—you were truly in your element? About The Hosts: Suchi Srinivasan is an expert in AI and digital transformation. Originally from India, her career includes roles at trailblazing organizations like Bell Labs and Microsoft. In 2011, she co-founded the Cleanweb Hackathon, a global initiative driving IT-powered climate solutions with over 10,000 members across 25+ countries. She also advises Women in Cloud, aiming to create $1B in economic opportunities for women entrepreneurs by 2030. Kamila Rakhimova is a fintech leader whose journey took her from Tajikistan to the U.S., where she built a career on her own terms. Leveraging her English proficiency and international relations expertise, she discovered the power of microfinance and moved to the U.S., eventually leading Amazon's Alexa Fund to support underrepresented founders. Subscribe to In Her Ellement on your podcast app of choice to hear meaningful conversations with women in digital, business, and technology.…

год назад 38:18

MP3•Главная эпизода

In this episode of the ISTAART Relay Podcast, Dr Jessica Caldwell, a neuropsychologist and director at the Cleveland Clinic, interviews Dr Ece Bayram, the newly appointed assistant professor and incoming communications chair for the ISTAART Lewy Body Dementias PIA. They explore Ece’s research on sex differences in genetics and environmental risk factors for Lewy body dementia. Ece shares insights into her innovative projects, the work of their PIA, plans for the upcoming AAIC and the significance of understanding sex and gender differences in neurodegenerative diseases, and the importance of designing research with community involvement. They also discuss the challenges of conducting studies in diverse populations and the need for global collaboration. Tune in to hear about the exciting developments in Lewy body dementia research and the impact of community-driven studies on advancing the field. -- The Alzheimer’s Association International Society to Advance Alzheimer’s Research and Treatment (ISTAART) convenes the global Alzheimer’s and dementia science community. Members share knowledge, fuel collaboration and advance research to find more effective ways to detect, treat and prevent Alzheimer’s and other dementias. Professional Interest Areas (PIA) are an assembly of ISTAART members with common subspecialties or interests. -- There are currently 30 PIAs covering a wide range of interests and fields, from the PIA to Elevate Early Career Researchers to Biofluid Based Biomarkers and everything in between. To sign-up to ISTAART and a PIA visit: http://www.istaart.alz.org Note: ISTAART Membership is free for students worldwide, and for researchers of all levels based in Low- and Middle-Income Countries. -- To book your place at this year’s AAIC (In-person and online) visit: http://www.aaic.alz.org You can also enjoy this show as a video on our YouTube Channel at: https://youtu.be/psSB1wOGSxA -- Find more information on our guests, and a full transcript of this podcast on our website at: www.dementiaresearcher.nihr.ac.uk/podcast -- The views and opinions expressed by guests in this podcast represent those of the guests and do not necessarily reflect those of NIHR Dementia Researchers, PIA membership, ISTAART or the Alzheimer's Association.

296 эпизодов

ISTAART Relay Podcast - Lewy Body Dementias PIA

Dementia Researcher

27 subscribers

published год назад

MP3•Главная эпизода

296 эпизодов

#Dementia Researcher #National Institute for Health Research #Science

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1
Minds in Motion: Dr Katie Breheny - Health Economics in Dementia Care 25:46

7 дней назад25:46

25:46

The Minds in Motion Podcast from Dementia Researcher in association with the NIHR Applied Research Collaborations and Alzheimer’s Society, brings together NIHR Dem Comm Research Fellows, to talk about their research and careers. In this second series, we hear from five of the Dem Comm Fellows each taking a turn as co-host and guest. Alongside the researchers we have the incredible Trevor Salomon, Alzheimer’s Society Volunteer & Chair of the European Dementia Carers Working Group as our permanent co-host and anchor. In show Trevor is joined by the guest from our previous show Dr Lis Grey from University of Bristol and the NIHR Applied Research Collaboration (ARC) West to interview Dr Katie Breheny. Katy works in the NIHR ARC West and University of Bristol. Katie is a health economist focused on improving the way we assess and value healthcare interventions for people living with dementia. Her research explores how traditional health economic methods can be adapted to better capture wellbeing and quality of life in dementia care. With a background in psychology, Katie’s work spans health economics, patient-reported outcomes, and methodological research, ensuring that economic evaluations reflect the real-world needs of individuals, carers, and service providers. She is particularly interested in making assessments more inclusive and meaningful, while also working on innovative projects such as adapting wellbeing questionnaires and developing personalised digital tools to support dementia care. Dem Comm is a 2 year programme funded by the National Institute of Health and Care Research and the Alzheimer's Society. It supports a new generation of dementia research leaders, bringing together researchers from different multidisciplinary backgrounds to encourage cross-cutting and community-orientated dementia research projects that can address key gaps in the evidence around dementia care and support, delivering transformative translational research. For information on the Fellowship visit: http://www.arc-wx.nihr.ac.uk/dem-comm-research-fellows For guest biographies, a full transcript and much more visit: http://www.dementiaresearcher.nihr.ac.uk Like what you hear? Please review, like, and share our podcast, and don't forget to subscribe to ensure you never miss an episode. If you prefer to watch rather than listen, you’ll find a video version of this podcast on our website, YouTube and Spotify. This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. Follow us on Social Media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.bsky.app/profile/dementiare…archer.bsky.social http://www.linkedin.com/company/dementia-researcher…

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Alzheimer's Research UK Conference Roundup 2025 52:39

21 день назад52:39

52:39

Last week we were in Birmingham for this years Alzheimer’s Research UK Conference. Hearing from researchers talking about their work and to learn about the latest discoveries in dementia research. In the show guest host and regular blogger Rebecca Williams talks with Dr Beth Williams, from the UK Dementia Research Institute at The University of Edinburgh, Gargi Roy from Bristol Medical School and Donatella Di Rienzo from the Alzheimer's Research UK Oxford Drug Discovery Institute. -- For more information on the event and the great work of Alzheimer’s Research UK visit https://www.alzheimersresearchuk.org/research/for-researchers/research-conference Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with full captions on our YouTube Channel: youtu.be/fuB4Y2KSt94 -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on Social Media: www.instagram.com/dementia_researcher/ www.facebook.com/Dementia.Researcher/ twitter.com/demrescommunity www.bsky.app/profile/dementiare…archer.bsky.social www.linkedin.com/company/dementia-researcher…

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Primary Progressive Aphasia: Keeping Connections Alive 58:55

5 weeks назад58:55

58:55

In recognition of the first Primary Progressive Aphasia (PPA) Awareness Day, this episode explores how speech and language therapists are working to support people with PPA to maintain communication and preserve connections with their loved ones. Dr Shalom Henderson is joined by three leading experts in speech and language therapy—Dr Anna Volkmer, Dr Jackie Kindell, and Rosemary Townsend—who are pioneering innovative interventions to help people living with PPA navigate the challenges of language loss. Together, they discuss the impact of this progressive condition on communication and relationships, and the critical role that speech therapy plays in maintaining meaningful conversations. -- Key Topics Discussed: 🔹 Understanding PPA – What is primary progressive aphasia, how does it affect speech and language, and how does it differ from other forms of dementia? 🔹 The Impact on Relationships – How communication difficulties affect personal relationships and contribute to social isolation. 🔹 The Role of Speech & Language Therapy – Exploring tailored interventions, communication partner training, and strategies that help families stay connected. 🔹 Barriers to Accessing Therapy – The challenges people face in getting speech and language therapy, and why more awareness is needed. 🔹 PPA Awareness Day (4th April 2025) – The first international awareness day dedicated to PPA, aiming to improve recognition, research, and support for those affected. -- This episode highlights the power of speech therapy in transforming lives, offering practical advice and real-world insights from clinical experts and researchers. 📢 Join the conversation! Mark your calendars for PPA Awareness Day on 4th April and help spread the word about the importance of early intervention and ongoing support. Essential links / resources mentioned in the show: Primary Progressive Aphasia Day - https://bit.ly/3ELrsOX PPA Awareness on Bluesky - https://bit.ly/4gD8OGt COS-PPA - https://bit.ly/4gFmFMu -- Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode. You can also find a video version on our website, in Spotify and on YouTube https://youtu.be/t2k2-UhJjbU. -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://www.twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://onelink.to/dementiaresearcher…

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ILBD Conference Highlights 2025 - Part Two 53:38

7 weeks назад53:38

53:38

We're back with Part Two of our special highlights podcasts from the International Lewy Body Dementia Conference in Amsterdam! This time, host Dr Sterre de Boer (Alzheimer’s Centre Amsterdam) leads the discussion with a fantastic panel of experts: 🔹 Salomón Salazar-Londoño (Medical Student, Xavierian University, Colombia & ISTAART Ambassador) 🔹 Dr Lauren Walker (Alzheimer’s Research UK Fellow, Newcastle University) 🔹 Dr Felipe Botero Rodriguez (Psychiatrist & Researcher, Stavanger University Hospital, Norway) In this episode, we explore some of the latest breakthroughs and pressing challenges in Lewy body dementia research, including: ✅ The state of DLB research in Latin America, highlighting gaps and opportunities ✅ Neuropathology & biomarker advances – What can pathology teach us about clinical symptoms? ✅ The "Body-First vs. Brain-First" debate – What comes first, and how does it impact diagnosis? ✅ The role of co-pathologies like Alzheimer’s disease and TDP-43 in DLB ✅ How international collaboration is shaping the future of dementia research This episode offers insights for researchers, clinicians, and anyone interested in the evolving landscape of Lewy body dementia. If you missed Part One, make sure to catch up before diving into this instalment! -- For more updates, follow #ILBDC25 on social media or visit https://www.ilbdc2025.com/ -- Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. A special thanks to the conference organisers for kindly supporting us to produce this podcast. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher http://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://onelink.to/dementiaresearcher…

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ILBD Conference Highlights 2025 - Part One 47:37

7 weeks назад47:37

47:37

Join us for the first of our two-part special podcast shows, recorded live at the International Lewy Body Dementia Conference in Amsterdam! In this episode postdoc researcher Dr Josh Harvey (University of Exeter) is joined by three expert guests: 🔹 Athina Grigoriou (PhD Student, University of Dundee) 🔹 Dr David Koss (Principal Investigator, University of Dundee) 🔹 Dr Joe Kane (Geriatric Psychiatrist, Queen’s University Belfast) Together, they discuss key highlights from the conference, including cutting-edge research on Lewy body dementia (LBD), Parkinson’s disease dementia (PDD), and synucleinopathies. Topics include: • The role of DNA damage in LBD and its links to neurodegeneration • A new Lewy Body Dementia Domain Rating Scale and its impact on clinical trials • Advances in biomarkers and imaging for early diagnosis • The latest insights on alpha-synuclein strains and their role in disease progression • Carer perspectives and the importance of peer support networks Whether you're a researcher, clinician, or just curious about the latest in dementia science, this episode is packed with insights from one of the field’s most important global meetings. We hope you will also join us in congratulating our host Josh on being awarded the Rising Star Award by the Conference organisers. For more updates, follow #ILBDC25 on social media or visit https://www.ilbdc2025.com/ -- Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. A special thanks to the conference organisers for kindly supporting us to produce this podcast. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher http://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://onelink.to/dementiaresearcher…

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Viva La Success: Acing Your PhD Thesis Defence 37:45

9 weeks назад37:45

37:45

In this episode of the Dementia Researcher Podcast, Dr Leah Fullegar discusses the PhD viva experience with three recent graduates who share their insights into the preparation and execution of their defences. Join us to learn from the experiences of Dr Hannah Hussain, Dr Aisling Flynn, and Shalom Henderson, who bring diverse perspectives from their respective fields. Each guest shares valuable insights into the preparation techniques that aided them, as well as reflections on their personal experiences of the viva. For anyone approaching their PhD defence or interested in understanding more about this crucial academic challenge, this podcast provides a comprehensive overview and practical advice. -- Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode. You can also find a video of our podcast on YouTube: https://youtu.be/2-wMNOh40Lo -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://www.twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://onelink.to/dementiaresearcher…

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Minds In Motion: Dr Lis Grey - Dementia Service Evaluation & Intervention Development 35:26

11 weeks назад35:26

35:26

The Minds in Motion Podcast from Dementia Researcher in association with the NIHR Applied Research Collaborations and Alzheimer’s Society, brings together NIHR Dem Comm Research Fellows, to talk about their research and careers. Over the next few months, we will be releasing the second series, hearing from five of the Dem Comm Fellows each taking e a turn as co-host and guest. Alongside the researchers we have the incredible Trevor Salomon, Alzheimer’s Society Volunteer & Chair of the European Dementia Carers Working Group as our permanent co-host and anchor. In show Trevor is joined by the guest from our previous show Dr Olivia Luijnenburg from King’s College London and the NIHR Applied Research Collaboration (ARC) South London to interview Dr Elisabeth (Lis) Grey. Lis works in the NIHR ARC West and University of Bristol. Lis is interested in how people with neurodegenerative disorders experience health and care services and is working on developing ways to improve services and support people to live well with these conditions. Lis has had a varied research career – from health services quality and delivery, through public health interventions and social care, and now more secondary and community care. The common threads to this work are health communication – be that between professionals, patient and professional, or to the public – and intervention development and evaluation. Lis mainly uses qualitative methods, particularly interviewing, and she is always excited to hear people’s thoughts and experiences through her work. Dem Comm is a 2 year programme funded by the National Institute of Health and Care Research and the Alzheimer's Society. It supports a new generation of dementia research leaders, bringing together researchers from different multidisciplinary backgrounds to encourage cross-cutting and community-orientated dementia research projects that can address key gaps in the evidence around dementia care and support, delivering transformative translational research. For information on the Fellowship visit: http://www.arc-wx.nihr.ac.uk/dem-comm-research-fellows For guest biographies, a full transcript and much more visit: http://www.dementiaresearcher.nihr.ac.uk Like what you hear? Please review, like, and share our podcast, and don't forget to subscribe to ensure you never miss an episode. If you prefer to watch rather than listen, you’ll find a video version of this podcast on our website & on YouTube: https://youtu.be/dlmu1JiW2Bc This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. Follow us on Social Media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.bsky.app/profile/dementiare…archer.bsky.social http://www.linkedin.com/company/dementia-researcher…

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2024 End of Year Reflections from Dementia Researchers 1:10:07

13 weeks назад1:10:07

1:10:07

Happy Holidays to all our listeners. Celebrate the season with the Dementia Researcher Podcast Christmas Special! Hosted by Adam Smith, this episode features regular bloggers from the Dementia Researcher website, Dr Anna Volkmer, Dr Connor Richardson, Dr Sam Moxon, Dr Jodi Watt, and Dr Clíona Farrell. Together, they reminisce about their 2024 journeys, discuss groundbreaking developments in their research field and explore what they’re most excited about for the coming year. Laced with humor and camaraderie, and some festive questions. Want to hear more from our guests? Check them out: Adam Smith: https://bit.ly/3DCHA4K Dr Anna Volkmer: https://bit.ly/4freouN Dr Connor Richardson: https://bit.ly/4gPwBUe Dr Jodi Watt: https://bit.ly/41Mqprz Dr Sam Moxon: https://bit.ly/41LLW3x Dr Clíona Farrell: https://bit.ly/4iPGh2D -- Full biographies on all our guests and a transcript can be found on our website: www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher http://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: onelink.to/dementiaresearcher…

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International Symposium on ALS / MND Roundup 2024 30:21

15 weeks назад30:21

30:21

In this special episode, recorded in Montreal, Canada, we bring you highlights from the International Symposium on ALS/MND 2024 organised by the MND Association. Host Dr Alys Griffiths, Senior Research Fellow at the University of Sheffield, is joined by three expert guests to discuss the latest research and breakthroughs in Amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND). Dr Megan Fowler, a postdoctoral researcher from Flinders University, shares insights into her work on endogenous retroviruses and their role in ALS. Professor Eneida Mioshi, from the University of East Anglia, explores cognitive and behavioural changes in ALS and FTD and their impact on care. Dr Ahmad Al Khleifat, a group leader at King’s College London, highlights advancements in genomic research and efforts to diversify ALS studies globally. Key topics include promising therapies like antisense oligonucleotides, the integration of patient voices in research, and the power of collaboration to accelerate progress. For more updates, follow #ALSMNDSymposium on social media or visit https://symposium.mndassociation.org -- Full biographies on all our guests and a transcript can be found on our website: www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher http://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: onelink.to/dementiaresearcher…

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Grant Writing - Tips from Grant Awardees & Grant Reviewers 37:21

15 weeks назад37:21

37:21

Recorded at the Alzheimer's Society ECR Retreat on the 19th June 2024. -- In this panel discussion / question and answer session, Katherine Gray, Alzheimer's Society Head of Research chairs a discussion with Professor Heather Mortiboys, Professor Nathan Davies, Dr Jeffrey Davies, Professor Andrey Abramov and John Major. Panellists provide tips and insights into the grant application process, providing their perspectives as grant reviewers and funding board members. They also provide advice on how to approach grant application writing. The panellists, who are leading researchers and volunteers on grant advisory boards, discuss the key components of a successful grant application, common mistakes, and how to demonstrate the potential impact of research. They also provide advice on resubmitting applications after initial rejection and how to effectively manage career breaks. Together they emphasise the importance of clear hypotheses, realistic expectations, proper costing, and team science. They also highlight the need for perseverance and flexibility in the application process. -- Last week Alzheimer’s Society announced that the ECR Retreat will be back on the 8th-9th July 2025. Keep an eye on the Dementia Researcher website for updates, and details on how to apply. -- Full biographies on all our guests and a transcript can be found on our website: https://ww.dementiaresearcher.nihr.ac.uk Watch more recordings from the ECR Retreat on our YouTube Channel: https://bit.ly/alzsocecrretreat2024 -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://www.twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://onelink.to/dementiaresearcher…

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Minds In Motion: Dr Olivia Luijnenburg - Spirituality in Dementia Care 39:38

17 weeks назад39:38

39:38

The Minds in Motion Podcast from Dementia Researcher in association with the NIHR Applied Research Collaborations and Alzheimer’s Society, brings together NIHR Dem Comm Research Fellows, to talk about their research and careers. Over the next few months, we will be releasing the second series, hearing from five of the Dem Comm Fellows each taking e a turn as co-host and guest. Alongside the researchers we have the incredible Trevor Salomon, Alzheimer’s Society Volunteer & Chair of the European Dementia Carers Working Group as our permanent co-host and anchor. -- In show Trevor is joined by Dr Sarah Smith from The University of Manchester and NIHR Applied Research Collaboration (ARC) Greater Manchester to interview Dr Olivia Luijnenburg. Olivia works in the NIHR Health and Social Care Workforce Research Unit at King’s College London. She works on various projects around social care workforce and care homes, however the focus in this show is on her research into spirituality in dementia care. We explore her focus on co-developing reflective tools to address the spiritual needs of care home residents living with dementia, as well as their families and care staff. Working to understand how spirituality, is broadly defined to define individuals meaning and purpose, and how accommodating this can enhance care practices in diverse settings. -- Dem Comm is a 2 year programme funded by the National Institute of Health and Care Research and the Alzheimer's Society. It supports a new generation of dementia research leaders, bringing together researchers from different multidisciplinary backgrounds to encourage cross-cutting and community-orientated dementia research projects that can address key gaps in the evidence around dementia care and support, delivering transformative translational research. -- For information on the Fellowship visit: http://www.arc-wx.nihr.ac.uk/dem-comm-research-fellows For guest biographies, a full transcript and much more visit: https://www.dementiaresearcher.nihr.ac.uk - Like what you hear? Please review, like, and share our podcast, and don't forget to subscribe to ensure you never miss an episode. If you prefer to watch rather than listen, you’ll find a video version of this podcast on our website & on YouTube. -- This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://www.bsky.app/profile/dementiare…archer.bsky.social https://www.linkedin.com/company/dementia-researcher…

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Stronger Together: Peer Support and Community 59:31

19 weeks назад59:31

59:31

In this episode of the Dementia Researcher Podcast, guest host Dr Megan Rose Readman from the University of Liverpool discusses the role of peer support and community in research careers. This session explores the importance of support networks at all career stages, from early career to senior roles. Megan is joined by three guests, each with experience in building and sustaining research communities specifically to support researchers working in all areas of Alzheimer's disease and all other forms of dementia, and neurodegeneration: Adam Smith from Dementia Researcher, who discusses their global community, including the recent launch of a new app designed to connect researchers. Dr Oz Ismail from Alzheimer's Association and ISTAART, who provides insights into their professional society’s efforts to support Alzheimer’s research globally. Josh Wright from Alzheimer’s Research UK, who explains the structure and benefits of their UK-wide network, especially for early-career researchers. -- Listeners will gain an understanding of how these communities function and the different forms of support available, from mentoring to practical resources. The episode also touches on how the pandemic has shifted peer support needs, with virtual communities becoming essential for many researchers. -- Five Top Tips from the show: Seek Out Professional Networks: Engaging with professional societies, like ISTAART or Dementia Researcher, can provide access to a broad community of peers and experts, which is especially valuable if you're working in isolation or in a niche area. Leverage Online Communities: Virtual communities offer a space to connect with others in your field, share resources, and find support—important for building connections, particularly when geographic location or funding constraints make in-person networking challenging. Participate in Mentorship Opportunities: Many research networks offer mentorship programmes, often through dedicated platforms or apps, where you can find mentors or become one yourself, helping to navigate career stages or specific research challenges. Engage in Journal Clubs and Special Interest Groups: Virtual journal clubs or topic-specific groups, as seen in Dementia Researcher’s app, allow researchers to discuss recent studies, share insights, and collaborate within specific research interests. Use Peer Support to Improve Wellbeing: Peer support networks provide a safe space for discussing challenges and successes beyond research—such as mental health or career setbacks—offering a layer of personal support often needed in academic careers. -- Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk Essential links / resources mentioned in the show: ISTAART - https://bit.ly/48E570N Alzheimer's Research UK Network - https://bit.ly/3AKKXpf Dementia Researcher Community App - https://bit.ly/3UJ2jd6 -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher http://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://onelink.to/dementiaresearcher…

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Decoding Familial British Dementia 41:46

21 weeks назад41:46

41:46

In this Dementia Researcher Podcast episode, Dr Aitana Sogorb Esteve hosts a discussion with Dr Charlie Arber and Sam Crawford from University College London, discussing their work on familial British dementia (FBD), a rare form of dementia affecting only a handful of families. The discussion explores the latest findings from human stem cell models that are helping researchers understand FBD’s unique genetic and pathological features, and how that can inform a wider understanding of familial Alzheimer’s Disease. Topics covered include: - Genetic causes and symptoms of familial British dementia - Use of stem cell models, particularly iPSCs, to study FBD in the lab - Potential biomarkers and implications for therapeutic research - How funding from the Race Against Dementia Ignition Fund is supporting advancements in rare dementia research -- Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk Find out more at Race Against Dementia: https://www.raceagainstdementia.com/ -- Like what you see? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher http://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://onelink.to/dementiaresearcher…

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Alzheimer Europe 2024 Conference Highlights - Part Two 32:47

23 weeks назад32:47

32:47

Last week Dementia Researcher attended the 34th Alzheimer Europe Conference in Geneva, Switzerland. In this podcast Dr Megan Polden and her guests bring you highlights from the second half of the event, sharing news and their best bits. Dr Megan Polden talks with Dr Aisling Flynn from Bournemouth University and Dr Emma Law from the Scottish Neuroprogressive and Dementia Network and Dr Lukas Duffner from Alzheimer Europe. This year’s Alzheimer Europe Conference, themed 'New Horizons – Innovating for Dementia,' brought together a diverse group of participants, including people living with dementia, carers, volunteers, Alzheimer association staff, policymakers, health and social care professionals, researchers, and academics. It remains a unique platform where the latest advances in fundamental science, care, policy, and public engagement are shared and discussed. Essential links / resources mentioned in the show: Alzheimer Europe - https://www.alzheimer-europe.org INTERDEM - https://interdem.org #34AEC on X - https://bit.ly/4dH3yjw Sex, Gender and Sexuality in the Context of Dementia - https://bit.ly/3UaVuk7 -- You can find out more about our guests and their work on our website. There you will also find a full transcript of the show: https://www.dementiaresearcher.nihr.ac.uk -- Prefer to watch rather than listen? Then check-out our YouTube channel for a full video version of this podcast: https://www.youtube.com/@DementiaResearcher -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with a transcript on our website. -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://www.twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://www.bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://www.onelink.to/dementiaresearcher -- The views and opinions expressed by guests in this podcast represent those of the guests and do not necessarily reflect those of NIHR Dementia Researchers, University College London or its partner organisations.…

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Alzheimer Europe 2024 Conference Highlights - Part One 30:34

23 weeks назад30:34