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Beth Parillon is a life coach with Ocean Organics Wellness & Coaching will discuss all things as they relate to down syndrome. I will share my personal stories, insights, my successes and my epic failures of raising my daughter with down syndrome. I will help guide you through this new journey of raising your child with down syndrome . Are you ready to get down?
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The University of Delaware hosts a two week summer camp for those who are interested in attending the CLSC two year college program. If you are interested in attending this program please use this link: https://www.cds.udel.edu/clsc/transition-options-for-high-school-students/ If you are interested in attending the CLSC two year college program ple…
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Are you ready for a vacation! The buddy cruise is the perfect vacation for the whole family! Parents get to meet other families with a child who has down syndrome and listen to guest speakers. The children and young adults with down syndrome get to make new friends and have the time of their life with games, dances, and fun activities. Are you read…
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In this interview I talk with Oliver & Hilda Bernier about their son Emillo. Oliver is a film maker and he made a documentary on his son from birth to first day in elementary school. They discuss the ups and downs of inclusion with school. Are you ready to get down!Beth Parillon
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Dr. Strang a pediatric lung doctor and sleep apnea specialist from Nemours talks about the signs and symptoms of sleep apnea. While it may be sound or seem cute to hear your child snoring is really the sound of an obstruction in the airway. Dr. Strang discusses the signs, symptoms, and treatments for sleep apnea. Are you ready to get down!…
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Brittany is a young woman with down syndrome who came up with an amazing idea in 2016 to create baskets of hope for moms with a newborn who has down syndrome. Since then she has given away over 1200 baskets in all 50 states. She receives generous donations both locally and nationally. She was awarded a very prestigious award from L'Oréal cosmetics,…
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In this episode I interviewed Liz, the founder of Ruby's rainbow in honor of her daughter Ruby who has down syndrome. Ruby's rainbow is an organization that provides scholarships to those who have down syndrome and who want to go to college. This organization gives away thousands of dollars in scholarship money that is all raised through awareness,…
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A night to shine is a special prom event for those in the special needs community. The event is sponsored by the Tim Tebow foundation. The event is hosted by five hundred churches all over the world simultaneously. The special guests are treated like royalty with dinner, dancing, karaoke, pictures, makeup, shoe shining, and limo rides. In this epis…
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In this episode I talk with Sofia's mom Jennifer about her amazing journey from adoption to modeling, becoming an actress and having two books be written about her. Hear how this amazing young girl with down syndrome is becoming a boss babe, handling fame, and starring in the upcoming movie The Hunger Games! Are you ready to get down!…
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In this episode I spoke with a transition coordinator about the process. If your child is about to graduate from high school this is the episode for you! It's not too late or too early to start planning for your child's future. Are you ready to get down!Beth Parillon
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In this episode I talk with a friend and fellow mom, Christine. She talks about the transition from high school to living as an adult. She talks about how the school has prepared her and her daughter and the services that are available for our children. This may be a scary time for us as parents but have faith in the process. Are you ready to get d…
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Do you know what life coaching is or how it is different from therapy? Are you afraid to ask for help? With coaching there is no judgement, only guidance to help you to get from where you are to where you want to be. In this episode I talk with a fellow life coach about coaching and the benefits of it. Are you ready to get down!…
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Do you know what infantile Spasms are, what they look like and why they need to be treated immediately? In this episode I speak with a mom who shares her story and how she was able to get a diagnosis after talking with five different doctors. She listened to her mom instincts and never gave up. Are you ready to get down!…
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In this episode I talk with a mom whose daughter had a new heart surgery technique done to repair a common congenital heart defect with child who have down syndrome. This technique is commonly done in Brazil and now there are three doctors in the USA who are doing this procedure. The procedure is less invasive, requires less blood, and less down ti…
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It's that time of the year for RSV, whooping cough, colds, the flu, and COVID. Do you know the signs and symptoms of each? In this episode I spoke with pediatrician Dr. Fox about the signs, symptoms, and treatment for all. Are you ready to get down?Beth Parillon
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This episode is a very personal one for me. This is for anyone going though a difficult time. I talk about worry vs fear, stress vs solutions. Fear can either destroy you or motivate you, which are you going to let it do? Are you ready to get down!Beth Parillon
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In this episode I talk with dad and movie producer John Luksetich and his daughter, the star of the movie, Maria. He talks about his latest movie Different Eye and the roller coaster ride of making this movie happen. You can watch the movie on Tubi or Amazon prime.Beth Parillon
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Are you looking for a gift idea? Look no more! Cast Kreations designs and t-shirts has what you are looking for! In this interview I talk with the founder of Cast Kreations Courtney and she talks about her new small business and her inspiration! Are you ready to get down!Beth Parillon
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Do you know what a special needs trust is or why it is so important to have one? In this episode I talk with Josh from Hope Trust. He gives us all the answers to why you need this, when to set this up, and how Hope Trust can help you! Are you ready to get down!Beth Parillon
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Are you having a hard time finding a speech therapist? Are you tired of driving to yet another appointment? In this episode hear how Lenora Edwards from Better Speech can make speech therapy easier all from the comfort of your own home! Are you ready to get down!Beth Parillon
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Have you heard of the NYC Buddy walk or their amazing video that is played on times square? In this episode we talk with the directors of this amazing event from the NDSS. Listen to how you can have your child featured in the video! Are you ready to get down!Beth Parillon
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Can your child ride a bike? In this episode I talk with the lead bike tech, Kent from the ican bike/ican shine program. This amazing program will give your child all of the experience to get them on their way to riding a two wheel bike! For more information you can check out their website: www. icanshine.org. Are you ready to get down!…
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In this episode I talk with Jena Schultz a pediatric physical therapist and founder of driving development. She talks about fun play, adaptive tools and toys to help with physical therapy. She can be found on Instagram and she has tons of recommendations and on-line learning.Beth Parillon
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It's Rachel Coleman talking with us about sign language and her amazing "Signing Time" learning tools to help your child to communicate when they can't speak. This was such an honor and an amazing interview! Listen to find out how you can help your child and where you can find the tools that Rachel has.…
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Let's hear it for our 50th episode! It's summer time which means ice cream and all things cooling and refreshing! In this episode I talk with a franchise owner and VP of sales about this ice cream shop and what makes them so unique and special is their employees! They hire those with intellectual disabilities! Are you ready to get down!…
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In this weeks episode I spoke with Caleb's mom. He is the youngest person with down syndrome to compete in a triathlon and YES finish! Caleb has won numerous awards and he is still going! His mom gives tips on staying healthy and what he has done to get to be able to compete. Are you ready to get down?…
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In this episode I talk with Beth Liesenfeld from Parent Friendly OT. She has a podcast called Elevate your advocacy through the IEP. She also has a signature course for parents at www.parentfriendlyot.com. She is an excellent resource for parents in the disability community.
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In this episode I talk with Alicia Hollis the director of community relations. We talk about what KSI is, what they do, what services do they provide and their long history of serving the disability community in Kent and Sussex counties. Are you ready to get down?Beth Parillon
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In this week's episode I interviewed Gia Holden Ruffin, the founder of Run Saniyah Run. This organization is in memory of her daughter Saniayh who had multiple disabilities and suddenly passed away. She is striving to help families in the disability community to provide them with support, care, friendship, understanding, and services not supported …
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In this episode I talk with Andrew Harbaugh, Program manager for Best Buddies in DE and Lisa Thorp, Co-Advisor at Cape Henlopen Best Buddies. If you live in DE, please join us for the Best Buddies Friendship Walk in-person May 21st at 10 am at Glasgow Park in Newark. For more information on Best Buddies go to www.bestbuddies.org…
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It's World Down Syndrome day! In this episode I talk with Colleen Hatcher the Senior manager of community relations for the National Down Syndrome Society (NDSS) and David DeSanctis the Public outreach associate for NDSS and actor who appeared in the film "Where hope grows." Listen to how they are celebrating this beautiful day. David also gives so…
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In this episode my daughter and I interviewed two officers from Best Buddies. Every second Wednesday in March Best Buddies hosts a campaign to spread the word inclusion and to stop using the word retard or retarded. They do this by having high school students sign a banner pledging to include those with intellectual and developmental disabilities.…
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If you are looking to adopt a child then this is the episode for you. I interviewed a mom in the down syndrome community. She tells her story, her motivation and why she chose to adopt internationally versus domestically. Are you ready to get down?Beth Parillon
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What is the Polar Bear Plunge? In this episode I interviewed Jon Buzby the director of Unified Champion Schools. He supports schools to participate in the Special Olympics to include typical peers and those with special needs. Jon talks about the history of the Lewes Polar Bear Plunge, how it got started, where the proceeds go, and so much more! Ar…
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In this episode Gabby and I talk about several entrepreneurs with down syndrome. We check out their website and tell you about their products and their specials they are offering. So this year support someone from the down syndrome community!Beth Parillon
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