A.M.P Up Autism is a new podcast about autism by author Tabitha Wilson, an Autism Mom Professional, who is a seasoned registered dietitian and physician assistant. Her goal is to “Open Eyes and Change Lives” around the world regarding autism. She integrates her wealth of knowledge from her clinical experience with her personal heartfelt journey as an autism mom. This podcast will cover various topics regarding nutrition, medicine, the education and hospital system, abuse, residential schools ...
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Presented by the Williams Syndrome Association, the Starry Eyed Podcast will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.
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Marci in the Middle is a podcast about real life and the transitions that come along with it. Here we talk about everything from relationships, to finding yourself and your place in the world, aging, as well as food, faith and everything fun. Just think of me as an older sister who’s gonna share her friends and maybe a few things I’ve learned along the way. Episodes premiere every other Monday and you can always find me on Instagram and Facebook @marciinthemiddle and on the web at marciinthe ...
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1. Sharlene-Monique - Of Love (Piano & Voice) 2. Jaz Karis - Home 3. Cassandra Shade - Don't Change 4. Tamesy - Of you 5. Aleksa Safiya - Understand Me 6. Lauren Tuchscherer - You Make Me 7. Fortune - Fake Love 8. Alduts Sherdley - Swipe Right 9. Karmessa - Game X 10. Tambourine - Unequally Yoked 11. Anna Speer - Cuffing Szn 12. Stalk Ashley - Complicated 13. Yasz Base - Anoymous Drerrie 14. Marzz - KMS. 15. Niqueaux - Love You Down 16. Kazé - Love ain't enough 17. Makaela - Be Careful 18. A ...
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Ep 43 - Fight for Your Rights with Delaney O'Connell and Chad Wilson
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Today's show exercises our civic duty as Jen and Brendan are joined by Delaney O'Connell, who is featured in the documentary Patrice, about a couple trying to fight the system that won't let them marry. On this show, we get to hear Delaney's story and how important self-advocacy is to her. Then we are joined by Chad Wilson from the Minnesota Disabi…
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Ep 42 - Old Friends/New Challenges with Seth Link and Lisa Elm
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Croutons and Hearts, my friends! This episode, Brendan introduces us to one of his longest and best friends: Seth Link. Seth tells us all about balancing the stress of his job with the rest of his life and how important the connection between friends is to him. Then we are joined by Lisa Elm who manages PACER's National Bullying Prevention Center. …
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Ep 41 - Staying Busy with Leo Ryan
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After plotting a mob-like takeover of jobs at Disney, Jen and Brendan are joined by Leo Ryan! He took brief break from doing seemingly everything to chat about working, volunteering, and giving back to the younger members of the WS community. You can look for him probably zooming from activity to activity on the WSA Adventure Seekers cruise next su…
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Ep 40 - Back to It with Joelle Packard and Robin Pegg
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It feels like an eon since we did a "regular" podcast, but here we are! Brendan is sandwiched between Producer Joel and Joelle Packard - who tells us all about her experience in college. Back-to-School continues with Robin Pegg joining Jen and Brendan to really get into the nuts and bolts of how students with Williams syndrome learn. The materials …
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Ep 39 - 15 Minutes of Fame Live from Camp Whispering Trails!
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Jen and Producer Joel are live at the WSA's Whispering Trails Camp for the Teen Camp's "15 Minutes of Fame" Talent Show! Join them as they channel their inner Gail and John from Pitch Perfect and provide commentary and cheers for the performers. Honestly I don't know if this show will be any good on audio, but we had a lot of fun recording it and I…
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Ep 38 - I Got Next! Live at the 2024 WSA Convention
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Recorded live in Phoenix at the 2024 WSA National Convention, Jen, Brendan, and Producer Joel welcome Emmy Coggshall and Chris Baxter to discuss their upcoming movie "I've Got Next" and the aspiration of inclusivity in front of and behind the camera. Then Gianna Morello joins the gang to talk about being on the Board of Trustees and a leader in the…
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Ep 37.75 - Post Convention Podlet
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Brendan got sick. Jen got sick. Joel got sick. A good time was had by all! The 2024 WSA Convention in Phoenix was a rousing success. Unfortunately the live podcast footage hasn't been delivered yet, so that will be released at a later date. Meanwhile, an exhausted Brendan and Joel do a quick recap of the Convention and look ahead to future episodes…
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Ep 37.5 - It's a Convention Podlet with the Gang!
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The time has come! Preparations for the 2024 WSA National Convention in Phoenix are in the final stretch. The gang has just a few minutes to get together, do some last minute chatting, and get ready for the Live Podcast show on Wednesday, July 10th at 4PM! If you come up to any of us and say "Croutons & Hearts," we'll give you an official Starry-Ey…
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Ep 37 - Weekend for Williams Live with Barb Nelson and Tayden Larsen
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Recorded Live on June 1st, Jen and Brendan and joined by Producer Joel and WSA Vice President of Programming Sarah Giddings during their marathon Weekend for Williams fundraiser. The podcast was also part of a POWER HOUR where all donations were doubled thanks to Barb Nelson, the owner of Brinkley's Boutique. Barb joined the gang to talk about all …
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Ep 36 - Defiantly Choosing Joy with Jess Holsapple and Tabitha Toney
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During Williams Syndrome Awareness Month, it's important to recognize that, while our community has much to celebrate, there are also some very real challenges and tragedies. Jen and Brendan are joined by Jessica Holsapple and Tabitha Toney, two mothers who each lost their young boys from complications with Williams syndrome. Jess continues to shar…
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Ep 35 - Awarenessing with Clare Neal and Micah Wilgus
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We're well into Williams Syndrome Awareness Month, and Jen and Brendan are joined by Clare Neal, whose niece spearheaded a fundraising effort with her dance troupe. After that, they're joined by Micah Wilgus, who is celebrating his 10th year of work at @McDonalds and is a tremendous advocate for Williams syndrome. Producer Joel also gives an update…
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Episode 24: Shani Wilson on Becoming Who You Were Created Be
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I don’t know about you, but I just love being around someone who is really living life, taking on new challenges, and also encouraging others to do the same. Shani Wilson is one of those people, and in this episode she shares about her life and growth as a person. She is beautiful and hilarious- constantly working to achieve her goals, loving her f…
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Ep 34 - Kicking off Awareness Month with Sofia Napoli and Denise Callen
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It's May, which means it's Awareness Month! Kicking the bleep out of the start of Awareness Month is Sofia Napoli. She joins Brendan and Producer Joel (filling in for Jen) to talk about the importance of advocating for yourself and to pump everyone up for this month's activities. Then Jen and Brendan are joined by Denise Callen, Director of Walks f…
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Episode 23: Chloe Hyatt on Cystic Fibrosis & Making the Most of Every Day
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When I first met Chloe, I was immediately drawn to her zest for life. While she has battled CF her whole life, she hasn’t let that slow her down or dim her light. She’s a true beauty with a big smile and wisdom that only comes from persevering through difficult times. In this episode, Chloe shares about the loss of her sister, life with Cystic Fibr…
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Ep 33 - Turning Back the Years with Jen Sellars and Mike Hladish
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In this episode, Jen and Brendan are joined by Jen and Mike...wait, that sounds confusing. Our hosts are joined by Jen Sellars (teacher and mom to a daughter with WS) and her friend Mike Hladish. They share their amazing story of growing up and reconnecting in a different part of the country that should warm your heart! We would like to acknowledge…
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Episode 22: Ashley Self on Addiction, Recovery & Restoration
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In today’s world, there is almost no one who hasn’t been personally affected by substance-abuse or addiction. And while it may seem impossible to overcome, today’s guest has a beautiful story of not only overcoming addiction but also living a life to help others out of the same darkness. Ashley Self is a beautiful example of hope, perseverance, and…
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Ep 32 - Living, Loving, & Guardianship with Stella Beard and Clayton Carroll
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In this episode, Jen and Brendan hear the fantastic and fascinating story of Stella Beard and Clayton Carroll. The mother and son duo discuss the tricky navigation of post-high school life and their journey from total guardianship to supported decision-making. Learn more about Clayton Carroll by searching "Clayton Carroll Speaks" on Facebook and se…
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Episode 21: Tabitha Richardson on Taking a Risk to Start Something New
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Today’s guest knows what it’s like to face her fears and follow her dreams. Several years ago Tabitha Richardson took a chance and began the process of obtaining her real estate license. Now she runs her own real estate company, 4 T Land Group, which has grown into a very successful business while also being a devoted wife & mom. Today, Tabitha sha…
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Ep 31 - Leadership and Whispering Trails with Joshua Dean and Emma Thomas
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Producer Joel joins Brendan as they interview Joshua Dean, an adventurous camper, hard worker, and fantastic leader fresh off his latest week in Georgia at Camp Blue Skies. Then, Jen and Brendan talk to Emma Thomas, Camp Director of Whispering Trails Therapy Camp and Teen Camp. Registration for the 2024 camp in July opens soon, and Emma tells us wh…
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Ep 30 - Joyeux Anniveraire! with Steph Caron and Cyndra Cole
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It's our 1-year extravaganza! Thanks so much to all of you for tuning in and supporting our show. To celebrate, we are joined by OG co-host Stephanie Caron to update us on how she's doing and reflect on what starting the podcast has meant to her. Then Cyndra Cole, former WSA Board President and Episode 2 guest, turns the tables and asks us question…
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Episode 20: Kristi Usher Harbuck on Suffering, Loss, & and Finding True Love (Twice)
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Today’s guest is Kristi Usher Harbuck, a dear friend, who has been through a lot. From losing her first husband to cancer, raising three kids as a young widow, and then finding love and happiness again., Kristi shares her journey through the best and worst of times. This is a very honest conversation about good things and hard things and holding on…
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Ep 29 - Prepping for College with Pascale and Gerald Momplaisir
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It's the last show of Year 1 of The Starry-Eyed Pod! Jen and Brendan are joined by Gerald and Pascale Momplaisir from Baltimore, MD. This Dad and Daughter Duo shares the excitement and opportunities of preparing for life after high school and getting ready for college. Pascale also gives us some insight into the particular challenges of being a you…
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Episode 19: Jennifer Irvin on Chasing Dreams, Working Hard, Making Money & Starting Over
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Today’s guest is Jennifer Irvin, a friend and inspiration. Jennifer is a small town girl who grew a multi-million dollar business and then left it to follow her convictions. She continues to pursue new dreams and crush her goals while lifting others up along the way. Jennifer champions other women, and her story will leave you hopeful and fired up …
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Ep 28 - Heart Health Month with Jess Stranz and Benjamin Jacob
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Hey, look! We're so fresh and so clean! There is a new logo and new visuals, but it's the same awesome show! First up is Jessica Stranz, an adult with WS from Michigan, sharing with Jen and Brendan her love of bowling, antiquing, and planes! Her journey with Williams syndrome is really wonderful! Then, for Heart Health Awareness month, we're joined…
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Episode 18: Breanna Webber on Finding Hope in the Midst of Infertility
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Y’all are just going to LOVE today’s guest, Breanna Webber! She is a friend and an inspiration. Bre and her husband, Chris, have struggled through infertility and found hope on the other side; she is beautiful, brave, genuine, and funny. Breanna graciously and candidly sat down with me to share their story of disappointment, loss, and unexpected jo…
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Ep 27 - The Tale of Alex and Alexandra
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Hark! Come gather ye round to hear the tale of Alex and Alexandra, who live lives touched by Williams syndrome! The show is joined today by Alexandra Reneer, an adult with WS living in Utah. She shares with us how being a dancer has allowed her to stay physically healthy and gives her the confidence to teach dance to others with developmental disab…
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Episode 17: New Year Check-In with Kelly J. Norman and Surrounding Yourself with the Right People
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Kelly J. Norman was my very first guest last January, and we loved her so much that I thought I would have her back to check in as we begin 2024! You may remember that she is a life & business coach, an author and Bible teacher as well as a wife and mom. Today, we talk about the importance of surrounding yourself with the right people and how to kn…
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Ep 26 - Phreezing in Phoenix with Nick, Lindsey, and J Chap!
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The WSA team is in Phoenix, AZ, doing more prep work for the upcoming WSA Convention, July 9-13, 2024, at the Downtown Hyatt Regency Hotel. Since the room block will be available for reservations starting Wednesday, January 10, we thought it would be a good time for more convention talk! Nick and Lindsey are back to talk about how preparations are …
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Episode 16: Caught Off Guard with Ashley Bachmann
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Today’s guest, Ashley Bachmann, shares about her new book, Caught Off Guard: A Testimony of Overcoming Suffering through Trusting God and Embracing Community. This is an incredible story of rescue as Ashley broke free from a tumultuous marriage and started over with nothing except her faith. Ashley shares about writing her book, the importance of c…
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Ep 25: Sharing Journeys with Anne Lemieux-Pocock, Tobi Akbas, and Hayley Cuccinello
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Happy Holidays from all of us at The Starry-Eyed Effect! It's a very special episode as we're joined by Anne Lemieux-Pocock, who, in addition to being Brendan's mom, is an accomplished writer. She's sharing her journey of being a mom to an individual with WS in beautiful chapters called "Being & Becoming: A Williams Syndrome ‘Mom-oir'” available at…
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Ep 24: Ottenheimer to the Rescue! with Scott Ottenheimer
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Look...did I have a whole other episode planned and then couldn't get it scheduled and was bailed out by awesome Board member Scott Ottenheimer? Maybe, but we were always going to have Scott as a guest! As his time on the WSA Board of Trustees comes to a close, Scott talks to Brendan and Jen about his time serving the WSA and how it has set the org…
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Ep 23: Caregiving the Caregivers with Sarah Giddings
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In this episode, Jen, Brendan, and Producer Joel delve into the crisis in this country surrounding parents and caregivers of individuals with developmental disabilities - specifically Williams syndrome. After watching the documentary "UNSEEN: How We're Failing Parent Caregivers & Why It Matters" (which you can watch at www.caregiverdoc.com), they s…
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Ep 22: ’Zona Talk with Nick and Lindsey
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Brendan joins from Austin, TX, where he just wrapped a weekend of working with the WSA Board of Trustees. What is that like? Well, he tells us. Then Jen and Brendan talk to Lindsey and Nick about planning the 2024 WSA Convention in Phoenix, AZ! Look out for Haboobs!!Williams Syndrome Association
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Episode 15: Julie Busler on Breaking Through the Darkness Of Mental Illness
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Today’s guest is Julie Busler, a wife & mom, speaker & author who graciously and honestly shares the story of her mental health journey through depression. She and her husband Ryan served as missionaries to Turkey for several years when she was overcome with debilitating PTSD and depression. She even considered ending her life. Instead, after seeki…
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Ep 21: The Spooky Oooky Effect with Megan, Julie, Marty McFly, a Cloud, and Professor Dilo Ph’Saurus from the Planet Spielberg
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Make sure the little ones are off to dreamland because this week, Jen and Brendan have terrifying tales of horrors, hayrides, and haunted houses! Joining the show is Megan McNeil and Julie Polansky to share everything they love about this ghoulish holiday. Then the gang gets together to bust some myths about Halloween and about Williams syndrome! A…
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Episode 14: Christi Copeland on Lessons Learned on the Long Road to Recovery
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Today’s guest is Christi Copeland, who has spent a year trying to recover from a surgery gone wrong . She is a warm, funny, loyal friend who has showed us all what it looks like to persevere. In this episode, Christi is sharing her story of recovery and all the things she’s learned along the way. You can follow her on TikTok @christicopeland. Thank…
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Ep 20: Gratitude and Gettin’ Fancy with Callie Truelove, Camille and Anthony Filippazzo
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Dust off your finest prêt-à-porter cause we're going to the society pages! Jen and Brendan catch up with Callie Truelove to share gratitude for red carpet premieres, celebrating stories, and everything surrounding the release of Truelove: The Film. Then, Joel joins Brendan to talk to Camille and Anthony Filippazzo about building community and the i…
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Episode 13: Jordan Rainer on Following Your Dreams Through Life’s Ups & Downs
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Today’s guest is Jordan Rainer, Nashville recording artist, songwriter and musician. Born in Atoka, Jordan left home to follow her dreams and is now a contestant on NBC’s The Voice. She joined me for a conversation about her career and some of the obstacles she’s overcome as she continues to find her way and build her career. Jordan’s humor, grit, …
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Ep 19: Live from Orlando with the Adventure Seekers
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Producer Joel is live in Orlando with the Adventure Seekers (the group of adults (18+) with WS. This trip was a couple of years in the making, with around 150 individuals with WS and their parents/caregivers descending on the Drury Plaza Hotel in Orlando, FL. Jen and Brendan chat with about a half-dozen attendees about what this trip means to them.…
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Ep 18: Volunteering with the Gang
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Producer Joel joins Jen and Brendan for an old-fashioned hang where they talk about all the events going on with the WSA and with all the amazing volunteers around the country. From hosting events to becoming part of the WSA Board of Trustees, there are many ways to get involved. Interested in helping out the WSA? Reach out to us at podcast@william…
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Ep 17: Back to School with Michelle Self
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It's a very special "Back to School" episode! WSA Educational Consultant Michelle Self joins us to discuss all things IEP and class inclusion! She shares examples from her own life with her son, Alex, and her work with Jen's family. From calling IEP meetings to figuring out what "class inclusion" looks like for your child, Michelle is available to …
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Ep 16: Camp and Speech with Kayla Patak and Bianca Corozzo
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We're back from camp, recovered from Covid, and gettin' ready for school! Today, Kayla Patak joins Brendan and Jen to talk about Whispering Trails Camp and how she uses that experience to prepare for the new school year. Then, Speech Pathologist Bianca Corozzo discusses her new consultancy with the WSA and how she hopes to help families and individ…
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Ep 15: LIVE FROM CAMP with the gang!
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Live from Camp!! This episode was recorded on July 31st live from Camp Twin Lakes in Rutledge, Georgia, at the WSA's Whispering Trails Therapy and Teen Camp. Producer Joel and Jen went live on Facebook with Brendan (at his headquarters in CT) to introduce everyone to the fantastic facility we enjoyed (despite the heat). While we promised a new epis…
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Ep 14: Team USA and Team Teachers with Maddie Woo, Cassandra Davide, and Kim Scheier
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Have you read the article on the young woman from Oregon with Williams syndrome who competed in Dressage in France at the Virtus Global Games? Oh you have? That's great because this week Jen and Brendan interview Maddie Woo and her dad, Aaron, about her experience and everything she overcame to make that dream happen. Then Producer Joel steps in fo…
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Ep 13: 7q11.23 Day with Kieran Devin Johnson and Jocelyn Krebs
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It's 7q11.23 Day! Jen and Brendan are joined by Kieran Devin Johnson, a young man from the Denver area who loves both paintball and @Southwest Airlines! Seriously, @Southwest , you must give this guy a listen! The Geneticist and WS Mom Jocelyn Krebs teaches Jen and Brendan about the importance of 7q11.23, what it means, and her wonderful artwork to…
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Ep 12: The Birch Family
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As Jen was returning home from her trip to Rhythm Nation, Joel and Brendan caught up with Steph to talk about the exciting developments going on in her life. Then, Brendan and Jen talk to Victoria and Alexandra Birch (thebirchfamilyllc.com) about their life on social media and their mission to spread kindness to everyone! Got a question for the sho…
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Ep 11: Tyler Levy and Dr. Barbara Pober
42:33
42:33
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Whew! Jen and Brendan are back after a week off recovering from Awareness Month! This week, Tyler Levy from Louisville, KY, joined them to discuss the importance of workplace inclusion, community support, and self-advocacy. He's followed by Dr. Barbara Pober, who has been at the forefront of genetic research and care for Williams syndrome for over …
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Ep 10: Singing Pretty with Mariella Elm, Tommy Barbarella, and Kristen Van Handel
45:27
45:27
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You know the song that you hear at the beginning of every episode? Our first guests, Mariella Elm and Tommy Barbarella, wrote that song. Mariella is 17 and has Williams syndrome, and her dad has been a professional musician for years, playing with such artists as the Jonas Brothers and Prince! They join us to discuss their musical, "The Girl Who Cr…
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Ep 9: Back in Time with Dr. Marty Levinson & Coco and Aaron Lombard
47:02
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This episode is going back in time with Dr. Marty Levinson! He sits down with Jen (with Stella!) and Brendan to talk about Williams syndrome's early days and the WSA's beginnings. Then they are joined by Coco and Aaron Lombard, a sister and brother team from Phoenix (by way of New Orleans). They discuss finding Williams syndrome resources later in …
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Ep 8: Gorgeous Donuts with Melanie Côté & Joanne and Morgan Jane Starkman
46:40
46:40
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This week, episode 1 guest Brendan Lemieux is now episode 8 guest host! He and Jen talk to the President of the Canadian Association for Williams Syndrome (CAWS), Melanie Côté, about her journey to create real job opportunities for people with developmental disabilities by creating her own donut shop, Do Good Donuts. Then they're joined by Joanne a…
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