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The LACNETS Podcast - Top 10 FAQs with neuroendocrine tumor (NET) experts

Learn Advocate Connect Neuroendocrine Tumor Society

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The LACNETS Podcast is a monthly series where we interview neuroendocrine tumor (NET) experts on various NET topics. Each expert will answer to top 10 FAQs in their area of expertise. Whether a listener is newly diagnosed, a longtime NET survivor, or a family member or loved one, the LACNETS Podcast serves as a tool to help anyone better understand NET. For more information, visit www.lacnets.org/podcast.
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CancerCare's free Connect Education Workshops are a way for people to learn about cancer-related issues from the convenience of their home or office. Leading experts in oncology provide the most up-to-date information in these workshops to help you and your loved ones better understand and cope with your cancer diagnosis, treatment options, quality-of-life concerns, treatment side effects, pain management, doctor-patient communication and other important topics.
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Business & Brain Tumor Talk

businessandbraintumortalk

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Hosted by Rick Franzo from Paradise Valley, Pennsylvania, ’Business and Brain Tumor Talk’ combines personal journeys with brain tumors and insightful business strategies, aiming to educate, inspire, and empower listeners.
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De Tumor Tapes

NPO Luister / BNNVARA

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In de Tumor Tapes hoor je het rauwe, eerlijke verhaal van Susan, die er na een uitstrijkje bij de huisarts achter komt dat ze een tumor van 3 centimeter in haar buik heeft. Diagnose: baarmoederhalskanker. In deze reality-podcast hoor je hoe Susan, samen met haar vriend, presentator en zanger Lex Uiting, vecht tegen deze heftige ziekte. Wat betekent deze tumor voor hun grootste wens om ooit samen een gezond kindje op de wereld te zetten?
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Tumor Bored with Hilario & Aneesh is a biweekly podcast that brings you a platform for thought-provoking discussions between two resident physicians in oncology that will shed light on the ins and outs of life in medicine and compel you to rethink some of your assumptions of medicine. We have refreshing and frank conversations on training in medicine, advances in oncology, physician entrepreneurship, and non-traditional paths in healthcare. Support this podcast: https://podcasters.spotify.co ...
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Smysl pro tumor

Podcasty České televize

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Jaká je cena naděje v boji o život? Dojemný a inspirující podcast, který se zabývá životními příběhy pacientů s rakovinou a jejich blízkých. Každá epizoda se zaměřuje na konkrétní aspekt boje s touto nemocí a poskytuje cenné informace a povzbuzení pro ty, kteří se s rakovinou potýkají nebo se s ní potýkali. Hosté zahrnují lékaře, pacienty, přátele a rodinné příslušníky, kteří se podělí o své příběhy a perspektivy.
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IL GRANDE FREDDOovvero le patologie tumoraliUna conferenza di Gabriella Giannì, farmacista, fitopreparatrice, amante della natura e studiosa di medicine complementariConferenza tenuta presso l'Emeroteca della Biblioteca Civica "Ricottiana" (Voghera) il 15 marzo 2015"Paura, confusione, domande non poste, risposte non date, senso di inadeguatezza, delusione... quale malato di cancro, o suo familiare, può non identificarsi in una o più di queste situazioni?Quella che avrebbe dovuto essere sconf ...
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ABOUT THIS EPISODE In this 2-part series, Dr. Osman Ahmed from University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this first episode, he outlines the types of liver-directed therapies and elaborates on ablative techniques including the newest technique, histotripsy. Listen to a fra…
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1. Stage II Disease 2. Overview of BEP, EP, VIP 3. Advanced, refractory disease 4. Survivorship considerations Citations As always, citations, and sources include education from our respective training programs, the Devita textbook, and Uptodate.com. We highly encourage review of guidelines published by ASCO, ESMO and other organizations local to y…
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- Definition of a Caregiver- What Research Tells Us About Caregivers’ Well Being- Caregiving for an Older Adult- Caregiving for a Younger Adult- Caregiving for a Friend- Caregivers for Cancer Survivors- Couples, Partners, Siblings & Friends- Family, Partner & Friend Communication- Care Coordination: Challenges & Tips- Stresses on Family, Partners &…
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1. Background, work up 2. Staging of seminoma and NSGCT 3. Young Adult/Adolescent Oncology 4. Management of Stage I Disease Citations As always, citations, and sources include education from our respective training programs, the Devita textbook, and Uptodate.com. We highly encourage review of guidelines published by ASCO, ESMO and other organizatio…
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What is supportive care or supportive oncology? What is cancer-related distress? How might NET patients benefit from supportive care? Yale oncologist Dr. Maryam Lustberg suggests strategies to manage cancer-related fatigue, diarrhea, nausea, mouth sores, peripheral neuropathy, distress, anxiety, and anxiety. She also addresses considerations for fe…
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- Overview of Cancer Survivorship- Managing Post Treatment Side Effects/Late Effects- Quality-of-Life Concerns- Fear of Recurrence- Finding Your New Normal- The Importance of Treatment Summaries and Encounter Notes- Follow-Up with Your Oncologist and Primary Care Doctor, Including Discussion of Health Screening and Concerns- Guidelines to Prepare f…
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ABOUT THIS EPISODE What is immunotherapy? How effective are they for neuroendocrine neoplasms (NENs)? Dr. Jennifer Eads from Penn Medicine answers common questions about immunotherapy. She discusses the latest in CAR T therapy, DLL3, and vaccine therapy for NENs. TOP TEN QUESTIONS ABOUT IMMUNOTHERAPY FOR NENS: What is immunotherapy? How does it wor…
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Join us in this heartfelt episode of Business and Brain Tumor Talk, hosted by Rick Franco, as we welcome Brenda Kleinsasser from Bismarck, North Dakota. Brenda is not only a brain tumor survivor but also a warrior against rheumatoid arthritis. Her journey is a testament to resilience, creativity, and the power of community. Brenda shares her incred…
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1. Historical Approach (cytoreduction, IFN-a, sunitinib 2. Prognostic risk scores 3. Evidence for modern doublet regimens 4. Later line therapy Citations As always, citations, and sources include education from our respective training programs, the Devita textbook, and Uptodate.com. We highly encourage review of guidelines published by ASCO, ESMO a…
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Welcome to another heartfelt and motivational episode of Business and Brain Tumors! This week, our host Rick Franzo sits down with Tiffanie Bailey-Romey, CEO of Bairo Real Estate. 🌟 Tiffanie’s journey is nothing short of inspiring. From her humble beginnings to becoming a top real estate broker in Pennsylvania, Georgia, and New York City, Tiffanie’…
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What is chemotherapy? When are they used for neuroendocrine neoplasms (NENs)? Dr. Pamela Kunz from Yale Medicine discusses the benefits, potential side effects and latest advances in chemotherapy for NENs. She explains how it differs from other treatments for NENs and how she counsels patients as they consider chemotherapy. TOP TEN QUESTIONS ABOUT …
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1. Risk Factors and Presentation 2. Staging and Paraneoplastic syndromes 3. Localized Therapy Options and Considerations 4. Evidence and Limitations for Adjuvant Systemic Therapy Citations As always, citations, and sources include education from our respective training programs, the Devita textbook, and Uptodate.com. We highly encourage review of g…
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- Understanding the Future of Cancer Research & Clinical Trials- Increased Focus on Earlier Detection & Treatment of Cancer- Health Care Disparities Research- Enhanced Knowledge of the Molecular Portrait of Cancer- Artificial Intelligence (AI) Driven Approaches for Diagnosis & Treatment of Cancer- Microsatellite Instability (MSI): Mutations in DNA …
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- Disproportionate Burden of COVID & Cancer on People of Color- Social Determinants of Health, Including Languages Spoken & Health Literacy- Influence of the Local & Regional Environment in Which You Live on Your Access to Oncology Care- Effect of COVID on Health Care Systems- How Race May Impact Your Access to Cancer Treatment, Management of Treat…
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What is PRRT? How is it different from the more commonly used radiation treatment? What are the possible side effects? Dr. Riham El Khouli from the University of Kentucky in Lexington discusses common questions and concerns about PRRT and shares some of the latest advances. MEET DR. RIHAM EL KHOULI, MD, PHD Associate Professor of Radiology, UK Coll…
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- Understanding Precision Medicine: Overview & Value of Precision Medicine- How Precision Medicine is Different from Targeted Treatments?- Precision Medicine Role’s in Informing Treatment Decisions: Predicting Response to Treatment- The Role of Precision Medicine in Deciding the Treatment for Lung Cancer, Leukemia & Colon Cancer- Talking with Your …
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Join us on this episode of Business and Brain Tumor Talk, where Rick talks with the Muoio family from Milford, Connecticut. We will focus this episode on the remarkable story of Anthony Muoio, a ten-year-old Pediatric Brain Tumor Survivor. His parents, Rob and Sarah, share their experiences from the day of his diagnosis to his brave recovery and th…
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Join Rick Franzo on “Business and Brain Tumor Talk” as he interviews Chris Yarnell, founder of Battle Borne, an organization that helps veterans with innovative services. In this episode, Chris shares how Battle Borne began and its current mission to provide essential help to veterans. Key points: The motivations for establishing Battle Borne and i…
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1. Immunohistochemistry of urothelial cancer 2. History of systemic therapy in advanced and metastatic disease 3. Pembrolizumab and Enfortumab Vedotin 4. Approach to second line therapy and beyond Citations As always, citations, and sources include education from our respective training programs, the Devita textbook, and Uptodate.com. We highly enc…
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Join Rick Franzo as he chats with Jeremy Burke and Matt Bauman, the innovative leaders behind Burke HomeServices and Dr. Energy Saver. In this episode, Jeremy and Matt share their nearly two-decade journey in the home services industry, from humble beginnings in framing work to becoming leaders in full-service remodeling and energy efficiency. They…
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ABOUT THIS EPISODE What are Targeted Therapies and how do they work? How and when would they be used in NETs? Dr. Scott Paulson from Baylor Cancer Center in Dallas discusses common questions and concerns about targeted therapies including side effects, dosing and treatment sequencing. Bonus: Dr. Paulson shares how we can learn from Harry Potter’s i…
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- Definition of a Caregiver- What Research Tells Us About Caregivers’ Well Being- Caregiving for an Older Adult- Caregiving for a Younger Adult- Couples, Partners, Siblings, & Friends- Challenges for Caregivers of Cancer Survivors- Family, Partner, & Friend Communication- Care Coordination Challenges & Tips- Stresses on Family, Partners, Friends, &…
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In this powerful episode, Rick Franzo sits down with Wendy Santana, a brain cancer survivor and a leading advocate for the brain tumor community. Wendy shares her intense journey from the unexpected onset of her illness, marked by a major stroke, through her difficult recovery, to becoming a strong advocate for those facing similar struggles. What …
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Join Rick Franzo as he welcomes Vince Maffeo, an entrepreneur who went from the cable television industry to making a significant impact in senior care through his franchises, Comfort Keepers and TruBlue Serving. In this episode, Vince shares how he has built a business that improves the lives of seniors throughout California's Central Valley, from…
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How do SSAs work? Should all NET patients be on one? What are the side effects? Dr. Edward Wolin from Mount Sinai Health System answers several common questions about the current and future role of somatostatin analogues in NET treatment. MEET Dr. EDWARD M. WOLIN Professor of Medicine, Medical Oncology, Icahn School of Medicine Director, Center for…
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In this episode of “Business and Brain Tumor” Rick Franzo goes into the world of Brian and Shantelle Davis, a creative duo who have built a reputation in a variety of industries. From demolition services to media production, the Davis's share their experiences and strategies for creating a successful and diverse business portfolio. Highlights: The …
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- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects & Pain Management- What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care- What to Consider When Selecting a Cancer Care Team & Treatmen…
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1. Etymology, presentation, and work-up of bladder/urothelial cancer 2. Role of perioperative systemic therapy 3. Tri-modality therapy (bladder sparing approach) 4. Considerations for upper tract urothelial cancer Citations As always, citations, and sources include education from our respective training programs, the Devita textbook, and Uptodate.c…
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1. Clinical presentation and work-up 2. Intestinal and pancreatobiliary subtypes 3. Role of perioperative therapy 4. Considerations for metastatic disease Citations As always, citations, and sources include education from our respective training programs, the Devita textbook, and Uptodate.com. We highly encourage review of guidelines published by A…
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- Overview of Common Eye & Vision Changes Related to Cancer Treatments- Discussion of Common Eye & Vision Changes, Including Causes & Risk Factors- Tips to Manage Dry Eyes, Watery Eyes, Itching Eyes, Blepharitis, Loss of Eyelashes, Changes in Vision, Cataracts, Floaters, & Flashing Lights- The Role of the Multidisciplinary Team- Tips to Manage Low …
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In this two-part series, we reprise “Navigating Clinical Trials: Expectations vs. Realities” with Taymeyah Al-Toubah. This was previously broadcast on August 19th, 2023, as a LACNETS monthly educational webinar. In Part 1, Taymeyah discusses clinical trial terminology, timeline, questions to ask, and misconceptions. In Part 2, Taymeyah answers ques…
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In this two-part series, we reprise “Navigating Clinical Trials: Expectations vs. Realities” with Taymeyah Al-Toubah. This was previously broadcast on August 19th, 2023, as a LACNETS monthly educational webinar. In Part 1, Taymeyah discusses clinical trial terminology, timeline, questions to ask, and misconceptions. In Part 2, Taymeyah answers ques…
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- Overview of Gastric Cancer, Including Diagnosis & Staging- Current Standard of Care, Including Chemotherapy- New Treatment Approaches & the Role of Targeted Treatment & Immunotherapy- Precision Medicine: Predicting Response to Treatment- The Role of Clinical Trials- How Research Contributes to Treatment Options- Controlling Treatment Side Effects…
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- Overview of the Different Names for Biomarker Testing & Why They Can Be Helpful for Treatment- Tumor Marker Testing, Genomic Profiling, Genomic Sequencing, Molecular Profiling, Next Generation Sequencing- The Relationship Between Biomarker Testing & Precision Medicine- Types of Biomarker Tests for Cancer Treatment- Do I Need Biomarker Testing for…
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Stejně jako je těžké přijmout tuto vážnou diagnózu, i po zdárném ukončení léčby nastává mnoho změn. Je otázkou, zda-li je vůbec možné vrátit se po prodělání tohoto onemocnění do stejného života. Závěrečná osmá epizoda naší podcastové série je o životě po rakovině. Hosty podcastu byly Marie Ábelová a onkologická pacientka Eliška Podzimková. Moderuje…
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1. On continuation of ADT and ARAT switch 2. Systemic therapy options after progression 3. Improper mandated crossover 4. PARP inhibitors in prostate cancer Citations As always, citations, and sources include education from our respective training programs, the Devita textbook, and Uptodate.com. We highly encourage review of guidelines published by…
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Šok, úzkost, zoufalost, pocit marnosti. Takové stavy mnohdy přepadnou lidi, u kterých se po první léčbě znovu objeví zhoubný nádor. A vzápětí se dostavuje strach, který si tak dobře pamatujete z doby, kdy jste se tuto diagnózu dozvěděli poprvé. Nejistota je zpátky a vy přemýšlíte znovu o další léčbě a budoucnosti. Sedmá epizoda naší podcastové séri…
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- Why Chemotherapy Causes Treatment Side Effects & Discomfort- Working with Your Healthcare Team to Better Understand & Cope with Potential Treatment Side Effects with a Plan to Manage or Prevent Them - Common Treatment Gastrointestinal (GI) Side Effects - You May Not Experience All of These - Loss of Appetite, Nausea, Vomiting, Mouth Sores, Stomat…
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When and how often do NETs spread to the bones or brain? How are they found? What is the treatment? Dr. Robert Ramirez of Vanderbilt University addresses concerns surrounding bone metastases (or “mets”) as well as rare brain metastases. MEET DR. ROBERT RAMIREZ, DO, FACP Dr. Robert Ramirez is a medical oncologist specializing in the treatment of tho…
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Rakovina dokáže v lidském těle napáchat velké škody. Zamávat ovšem umí také s psychikou pacientů. Díky novým lékům, přístrojům i léčebným metodám už dnes naštěstí tato diagnóza neznamená rozsudek smrti, tak jako tomu bylo ještě před dvaceti lety, ale ne vždycky mají čas se zajímat i o duši. Právě psychika přitom dokáže podle řady vědeckých studií z…
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- Overview and Definition of Biomarkers- What Are Some Examples of Biomarker Testing- How Biomarker Testing Provides Useful Information for Cancer Treatment - Why the Molecular Portrait of Cancer Is So Important- The Role of the Pathologist- Benefits of Biomarker Testing & Precision Medicine- Predicting Response to Treatment- Clinical Trials: How R…
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- Unique Needs of Young Adult Cancer Survivors- Identity, Relationships & Intimacy- Dating- Couples/Partners Dealing with Survivorship- Communicating about Sex- Sexuality & Intimacy- Sex Drive: Ability & Desire- Tips to Deal with Vaginal Dryness, Premature Menopause, Erectile Dysfunction, Premature Ejaculation & Sperm Banking- Low Desire: How to Ge…
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Léčba rakoviny s sebou přináší řadu vedlejších příznaků a klade vysoké nároky na psychiku postiženého člověka i na jeho nejbližší okolí. K psychologickým aspektům, které ovlivňují průběh nádorového onemocnění, můžeme zařadit zpracování diagnózy, psychické přizpůsobení zahrnující faktory stresu, sociální opory, partnerských vztahů, rodiny, sexuálníc…
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1. The chemotherapy revolution in prostate cancer 2. Role of ARATs in earlier disease states 3. Triple therapy (chemotherapy, ADT, and ARAT) 4. Considerations for frailer patients with indolent disease Citations As always, citations, and sources include education from our respective training programs, the Devita textbook, and Uptodate.com. We highl…
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Před první chemoterapií velká část onkologických pacientů položí svému lékaři otázku: „Přijdu o vlasy?“ Chemoterapie může mnoha nemocným zachránit život, bohužel ale přináší i řadu velmi nepříjemných vedlejších účinků. Čtvrtá epizoda je o problémech se ztrátou vlasů a jak je zachránit. Hosty podcastu byly dámy MUDr. Lucie Reifová a onkologická paci…
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Ve chvíli, kdy dojde k vyslovení slova rakovina, myslí pacienti hlavně na smrt. Starost o kvalitu svého budoucího života často nemají. Jenže rakovina může narušit i schopnost mít děti. Jde mít kvalitní milostný život i po chemoterapii? Třetí epizoda je o problémech s reprodukcí s profesorkou MUDr. Petrou Tesařovou, CSc a onkologickou pacientkou, He…
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- Overview of Cancer & the LGBTQI+ Community, Including HIV & HPV- The LGBTQI+ Community’s Disproportionate Cancer Burden- Addressing the LGBTQI+ Health Disparities Gap, Including Mistrust of Health Care Providers- Barriers to Health Care Access, Including Discrimination- Health Care, Cancer Screening, Palliative and Supportive Care, Affordable Hou…
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Po vyslechnutí diagnózy přichází oznámení nejbližším a okolí – přátelům, rodině, příbuzným, jejich obavy, jak o tématu mluvit, jak se k nemocnému chovat nebo absurdní otázky, které někteří lidé kladli. Druhá epizoda speciální podcastové série je o reakcích okolí s psychoterapeutkou Pavlou Dolákovou a onkologickým pacientem Jakubem. Moderuje Barbora…
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NET dietician Sina Teskey from the Medical College of Wisconsin answers common questions about diet and nutrition raised among NET patients and caregivers. She addresses special diets, food restrictions, and whether sugar “feeds” cancer. Sina also speaks to diarrhea, and digestive enzymes and shares tips on how to maintain nutrition and weight. MEE…
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Poslechněte si novou podcastovou sérii Smysl pro tumor, která vznikla ve spolupráci České televize s organizací Fuck Cancer. Inspirující podcast, který se zabývá životními příběhy pacientů s rakovinou, jejich blízkých i odborníků, kteří jim tento boj pomáhají zvládnout. První epizoda je o sdělování diagnózy s přednostkou Kliniky dětské hematologie …
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