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A podcast dedicated to Long Covid. Noreen Jameel and Emily Kate Stephens talk to fellow sufferers, doctors and experts searching for answers about this new, debilitating post-viral condition. So if you are one of the millions suffering from, or interested in, this new condition - tune in to our weekly podcast.
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Long Covid Podcast
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Long Covid Podcast

Jackie Baxter

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The Podcast by and for Long Covid sufferers. Long Covid is estimated to affect at least 1 in 5 people infected with Covid-19. Many of these people were fit & healthy, many were successfully managing other conditions. Some people recover within a few months, but there are many who have been suffering for much much longer. ​ Although there is currently no "cure" for Long Covid, and the thousands of people still ill have been searching for answers for a long time, in this podcast I hope to expl ...
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This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only cons ...
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Long COVID Physio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with Long COVID and allies. We work internationally across advocacy, policy, guideline development and research. Our education outputs are for anybody living with Long COVID and people wanting to learn more.
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Deze podcast is ook te beluisteren in prikkelarme versie. De prikkelarme afleveringen vind je onder de reguliere afleveringen. Zeker tienduizenden Long Covid-patiënten kampen na de coronapandemie nog met ernstige klachten. Voor velen van hen loopt de weg in het ziekenhuis dood, er is namelijk nog geen behandeling gevonden die genezing biedt. Long Covid-patiënten zoeken daarom vaak hun heil bij alternatieve behandelingen. In wat voor wereld komen patiënten bij deze zoektocht naar genezing ter ...
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Covid-19 Long Haulers - Long Covid Coronavirus ... IT ALL SUCKS!!! The REAL NAME for it: ”CHRONIC COVID SYNDROME” We are here to share our lived experience with the coronavirus; our expertise; our story and the stories of the MANY others directly and indirectly affected by Covid-19, including those on the front line of healthcare. Your hosts: Staci RN, PhD, professor of nursing; Doug Attorney, Physician Assistant, Entrepreneur. Together, we will, talk, share, interview, investigate and provi ...
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show series
 
Episode 110 of the Long Covid Podcast is a chat with Lisa McCorkell, Gina Assaf & Hannah Davis, co-leads & co-founders of the Patient-Led Research Collaborative. We chat about how Long Covid & the Body Politic Slack community brought them all together, and how the organisation has progressed and flourished from there. Website: patientledresearch.co…
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On this podcast I talk about anxiety and depression, the gaslighting, mental health and the autonomic nervous system. In this episode I discuss the importance of feeling able to talk about anxiety and depression and how this has an effect on our lives. I discuss how important mental health is, how it should not be made taboo or minimised. I talk ab…
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Imperial College Professor of Immunology, Danny Altmann recently published “The immunology of long COVID”, a fantastically comprehensive overview in Nature Reviews Immunology. In this week’s episode Altmann, to whom we first spoke in the summer of 2021, talks us through some of the highlights of the work he's reviewed - serotonin depletion, gut bio…
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Episode 109 of the Long Covid podcast is a chat with Julie Black about her recovery from Long Covid. We speak through her illness, what she found that helped as well as other observations she has. As with all recovery stories - this is just one person's experience. No two recovery stories are likely to be carbon copies of each other. **transcript n…
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On this episode of the podcast I am talking with Jo Thomas personalised coach. Jo and I talk about holistic health and wellbeing, the importance of the medical model interlinked with emotional and mental health support along with therapies to achieve personal equilibrium. Jo explains how the autonomic nervous system is effected and how this impacts…
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Episode 108 of the Long Covid Podcast is a chat with Cardiologists and researchers, Vassilios Vassilou & Vicky Tsampasian. We discuss cardiac-related things they have seen in Long Covid patients as well as their research into risk factors of Long Covid and why this is important. https://journals.plos.org/globalpublichealth/article?id=10.1371/journa…
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Episode 107 of the Long Covid Podcast is a chat with the fabulous Raelan Agle who has recovered from Chronic Fatigue Syndrome and is passionate about sharing both her own recovery story and those of others. We chat through her own recovery and some of the themes and highlights of people she has spoken to on her channel. This is so full of hope and …
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Dr. Amy Proal is the President and Research Director of PolyBio Research Foundation, a non-profit organisation that brings together some of the brightest scientific minds to research how infection-associated chronic conditions are studied, diagnosed and treated. Their work into Long Covid is bringing together some of the leaders in the field to acc…
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This is episode 80! I am so pleased to have my fellow LCNMUK (Long Covid nurses and midwives UK) colleague and friend Kerry join me in this special episode. I am sorry the break I took turned into a longer one then I had intended, but as I am sure you understand that is the reality of living with Long Covid or any long term condition and elements o…
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Episode 106 of the Long Covid Podcast is a chat with Dr Taylor Krick from the Washington Wellness Centre and also the host of the "Autoimmune Doc Podcast" We chat through his experiences with patients with autoimmunity both before Covid and since Long Covid came along, as well as some of the patterns he is seeing. www.autoimmunedocpodcast.com @auto…
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Episode 105 of the Long Covid Podcast is a chat with Dr Calum Carson, Senior Research Associate at Lancaster University about the Inclusive Remote and Hybrid Working Study which he is involved in. Participate in the study Project website Previous study The changing workplace: Enabling disability-inclusive hybrid working - Lancaster University X-Hea…
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Michael Peluso M.D., an HIV and infectious disease specialist at UCSF, has been studying Long Covid patients since April 2020 (LIINC Study). This, along with his history of working with HIV and other viruses, has given him the knowledge and methods to make some break-throughs into Long Covid pathogenesis, effects and, potentially, treatments. He, a…
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Graag tippen we je de nieuwe NPO Radio 1-podcast 'Zieke erfenis' van onze collega Nicole de Jong. Een indrukwekkend verhaal over de impact van erfelijke ziekten op de families waarin dit voorkomt, en de (mogelijke) dragers die moeten beslissen of ze willen weten of ze de ziekte later gaan krijgen. Luister hier de trailer, en zoek naar 'Zieke erfeni…
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Episode 104 of the Long Covid Podcast is a chat with artist, Alison Larkman, about her project "I would be here if I could" which is currently in progress. We chat about the inspiration behind the project, and Alison's experiences with ME which really resonate throughout the project. More information, or participate! www.IWouldbeHereIfICould.com X-…
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Episode 103 of the Long Covid Podcast is a chat with the fabulous Dr Amy Proal, a microbiologist researching viral persistence in Long Covid. We chat through what brought her to this research as well as taking a bit of a deep dive into the topic. Review Paper: https://www.nature.com/articles/s41590-023-01601-2#MOESM1 PolyBio Research Foundation rec…
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Episode 102 of the Long Covid Podcast is a chat with Dan Neuffer about his experiences with ME/CFS and how that led him to create the ANS Rewire program. We discuss Dan's hypothesis for post viral fatigue syndrome, and how this relates to Long Covid recovery. Get Dan's free e-book Request the free intro lessons for ANS Rewire CFS Unravelled - YouTu…
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Eric Topol must be one of the leading voices in Long Covid advocacy. Cardiologist, scientist, author, editor-in-chief of Medscape, and founder of the Scripps Research Translational Institute, Topol has written about Long Covid in publications from The Lancet and Nature, to The Washington Post. As a clinician a large proportion of his patients are n…
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Episode 101 of the Long Covid Podcast welcomes back Dr Sally Riggs for a chat about Polyvagal theory and how this relates to Long Covid. We talk through some Polyvagal strategies that can be tried as well as Sally's personal experience. Episode #23 - Sally's previous episode More info on doing SSP with Sally Unyte ILS SSP practitioners "how to find…
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Episode 100 (yes - 100!!) of the Long Covid Podcast is a chat with the fabulous Michelle Irving, a coach working with people with chronic illness to help them to feel empowered. We talk about her own experiences with chronic conditions and how she is using them to help guide others. This is a wonderful, inspiring discussion, always focusing on what…
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Episode 99 of the Long Covid Podcast is a chat with the fabulous Viola Sampson, microbiome analyst and certified health coach. Viola has recovered from ME after a long illness and is passionate about helping people with fatigue conditions through her knowledge of the microbiome. This is a fantastic dive into what the microbiome is, and how we might…
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Episode 98 of the Long Covid Podcast is a chat with Charlotte Hammond who is sharing her recovery story! We chat through her initial illness, symptoms, what she found that helped as well as more useful stuff for those still suffering. Charity providing counselling (UK) Dr Sinclair X-Health.show - meet the future of healthcare Kill your pain once& f…
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Episode 97 of the Long Covid Podcast is a chat with Dr Harlan Krumholz, Cardiologist, leading research scientist at Yale and also the co-lead of the Paxlovid Trial. We chat around the research into Long Covid at Yale - the Listen Study as well as the Paxlovid Trial which are collaborations with Akiko Iwasaki, as well as the way that these studies a…
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Harlan Krumholtz, cardiologist and Professor of Medicine at Yale University, is attempting to move the needle when it comes to patient-centric care in Long Covid and beyond. Working closely with immunologist Akiko Iwasaki, Krumholz not only looks at the heart when it comes to his research into Long Covid. Together this Long Covid power couple are t…
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This is episode 79 of the podcast, I have recorded and brought the podcast to you guys every single week for the last 79 weeks. I am appreciative and grateful to everyone single person who has listened and shared the podcast, I also love receiving the lovely messages and comments from you guys, from all over the world. I have always said I want to …
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Episode 96 of the Long Covid Podcast is a chat with Dr Masha Makeeva, Canadian Board-Certified Naturopathic Doctor, educator, and motivational speaker, but also has experience of Long Covid and other chronic conditions. We chat through her own experiences and how her knowledge as a doctor (as well as previous illness) has helped her to move towards…
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Many of you may have seen the news recently, headlines stating Robbie Williams had to stop a gig after only 3 songs; allegedly because he was exhausted and said, it is because he has Long Covid. The Long Covid community reached out online and showed support and care however shortly after this in a video interview, Robbie Williams allegedly stated h…
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Episode 95 of the Long Covid Podcast is a chat with the fabulous Élaina Gauthier-Mamaril, Interdisciplinary Research Fellow at the Centre for Biomedicine, Self and Society at the University of Edingurgh. She has experience of disability through ME/CFS and is also presenting part of her research at the Edinburgh Fringe this summer as a show - "Long …
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My guest today is Merel who is the choir master for the Long Covid Kids Choir. Merel talks about children with long covid and how they lack support and understanding from the wider society. Merel who lives with Long Covid herself wanted to find a way to support children with Long Covid, she contacted Long Covid Kids Charity to find out how she may …
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Episode 94 of the Long Covid Podcast is a bit special - here I am handing over my hosting duties to my partner, Malky, so he can interview me about my recovery. Yes - my recovery - from Long Covid. Although it's impossible to cover everything (I've already thought of loads of things I wanted to say but forgot), hopefully we got most of the importan…
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Credited as being the founder of functional medicine, Dr Leo Galland has spent the past 40 years trying to create a patient-centred version of healthcare. Using pharmaceuticals, supplements, lifestyle and complimentary therapies he has drawn on his vast knowledge of patients and holistic healing, to create a comprehensive protocol for Long Covid pa…
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After a run of amazing guests I find myself alone on the podcast today, I wanted to talk about the impact the past, present and future has on every day. A memory popped up on my social media, a picture of me pre Long Covid. I looked at the picture and remembered, it was a beautiful day, the fun I had with a good friend, the good food and drink, the…
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Episode 93 of the Long Covid Podcast is a chat with Dr Viki Male who is doing research into Long Covid and menstruation, in collaboration with the app Visible, as well as the Wilco study. We chat about the 2 different studies she is involved in, and how they will hopefully bring together a load of data to give some answers. This study is a really c…
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In this episode of the podcast I talk with guest Rachel Jessey who is the owner of BeNourished. Rachel has been in clinical practice for 13 years and over the last 3 years has been heavily involved in the long covid space. Rachel talks about how her interest developed in the oral, nasal and gut microbiome, and how her son was effected after being h…
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Epsiode 92 of the Long Covid Podcast is the second half of my question & answer session with Dr Groysman - the link to the first half is below, if you've not already heard it. If you have more questions for Dr Groysman - or indeed any of my guests - do get in touch. Dr Groysman episode on Stellate Ganglion Block Part 1 of this interview X-Health.sh…
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Veel long covid-patiënten zoeken hun toevlucht bij alternatieve behandelaren. Viroloog Marc van Ranst waarschuwt voor de gevaren hiervan, kwakzalverij ligt volgens hem op de loer. Maar wat is kwakzalverij eigenlijk? Op de gezondheidsbeurs is te zien hoe er een nieuwe markt is ontstaan, allerlei gezondheidsgoeroes beweren dé oplossing voor long covi…
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Long covid-patiënten Lieke en Frederique zijn wanhopig op zoek naar een manier om beter te worden. Ze zijn bereid om van alles te proberen, van een oorpiercing tot ozontherapie. In wat voor wereld komen patiënten bij deze zoektocht naar genezing terecht? En zijn er mensen die geld aan hen willen verdienen? Longarts Merel Hellemons vertelt of er al …
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Er is nog geen bewezen behandeling, maar patiënten genezen soms wél na een alternatieve therapie. De nuchtere Zeeuwen Petra en Ben hebben een merkwaardig verhaal. Na een therapie met klankschalen en meditatieve visualisatie zijn ze direct genezen van hun long covid. Ziet deze therapeut iets wat dokters in het ziekenhuis niet zien? Een andere opmerk…
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In de hoop op genezing zijn long covid-patiënten bereid om veel geld uit te geven aan allerhande alternatieve behandelingen. Patiënten Alexandra en Lieke tasten diep in de buidel, maar komen geen steek verder. Wordt er misbruik gemaakt van de kwetsbare positie van patiënten? Wat voor beloftes doen behandelaren? Zijn ze eerlijk over de resultaten of…
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Update: op 02/09/2023 is deze podcast-aflevering aangepast. De Inspectie voor de Gezondheidszorg meldde eerder dat het voorschrijven van Ivermectine voor long covid niet per definitie strafbaar is. Naar aanleiding van een uitspraak van het Medisch Tuchtcollege en de rechtbank oordeelde de inspectie later dat dit toch wel het geval is. In 2001 werd …
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Dit is de prikkelvrije versie van de podcast. Veel long covid-patiënten zoeken hun toevlucht bij alternatieve behandelaren. Viroloog Marc van Ranst waarschuwt voor de gevaren hiervan, kwakzalverij ligt volgens hem op de loer. Maar wat is kwakzalverij eigenlijk? Op de gezondheidsbeurs is te zien hoe er een nieuwe markt is ontstaan, allerlei gezondhe…
  continue reading
 
Dit is de prikkelarme versie. Long covid-patiënten Lieke en Frederique zijn wanhopig op zoek naar een manier om beter te worden. Ze zijn bereid om van alles te proberen, van een oorpiercing tot ozontherapie. In wat voor wereld komen patiënten bij deze zoektocht naar genezing terecht? En zijn er mensen die geld aan hen willen verdienen? Longarts Mer…
  continue reading
 
Dit is de prikkelarme versie. Er is nog geen bewezen behandeling, maar patiënten genezen soms wél na een alternatieve therapie. De nuchtere Zeeuwen Petra en Ben hebben een merkwaardig verhaal. Na een therapie met klankschalen en meditatieve visualisatie zijn ze direct genezen van hun long covid. Ziet deze therapeut iets wat dokters in het ziekenhui…
  continue reading
 
Dit is de prikkelarme versie. In de hoop op genezing zijn long covid-patiënten bereid om veel geld uit te geven aan allerhande alternatieve behandelingen. Patiënten Alexandra en Lieke tasten diep in de buidel, maar komen geen steek verder. Wordt er misbruik gemaakt van de kwetsbare positie van patiënten? Wat voor beloftes doen behandelaren? Zijn ze…
  continue reading
 
Dit is de prikkelarme versie. Update: op 02/09/2023 is deze podcast-aflevering aangepast. De Inspectie voor de Gezondheidszorg meldde eerder dat het voorschrijven van Ivermectine voor long covid niet per definitie strafbaar is. Naar aanleiding van een uitspraak van het Medisch Tuchtcollege en de rechtbank oordeelde de inspectie later dat dit toch w…
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In this episode of the podcast I am please to have another great guest join me, Reema Ahmad is a Neuro linguistics programming (NLP), trauma and relationship counsellor and also a life coach. Reema is also an author of the book; un-parenting: sharing awkward truths with curious kids and a two time guest for Ted talks. Reema has long covid, and talk…
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