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Alex's Wish for Duchenne
Manage episode 421072943 series 3412147
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Your son has a life expectancy in the 20’s. What are you going to do about it?
Today’s guest is the embodiment of triumph over adversity, as are her family. Emma Hallam’s life is marked by extraordinary resilience in the face of overwhelming personal loss, culminating in the diagnosis of her son Alex with Duchenne muscular dystrophy. Duchenne is a life-limiting, aggressive form of progressive muscle weakness. I’ll leave Emma to clarify exactly what that means for Alex and the family.
But, as alarming as the prognosis proves to be, this is not a story of hopelessness and self-pity. On the contrary, it’s a candid story of how to turn whatever life throws at you into a force for good. For Emma, that meant channelling her energy into creating the charity Alex's Wish, aimed at funding research and raising awareness for this muscle-wasting disease.
Show Notes: https://www.battingthebreeze.com/alexs-wish-for-duchenne/
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