When a young Eva Kollisch arrives as a refugee in New York in 1940, she finds a community among socialists who share her values and idealism. She soon discovers ‘the cause’ isn’t as idyllic as it seems. Little does she know this is the beginning of a lifelong commitment to activism and her determination to create radical change in ways that include belonging, love and one's full self. In addition to Eva Kollisch’s memoirs Girl in Movement (2000) and The Ground Under My Feet (2014), LBI’s collections include an oral history interview with Eva conducted in 2014 and the papers of Eva’s mother, poet Margarete Kolllisch, which document Eva’s childhood experience on the Kindertransport. Learn more at www.lbi.org/kollisch . Exile is a production of the Leo Baeck Institute , New York | Berlin and Antica Productions . It’s narrated by Mandy Patinkin. Executive Producers include Katrina Onstad, Stuart Coxe, and Bernie Blum. Senior Producer is Debbie Pacheco. Associate Producers are Hailey Choi and Emily Morantz. Research and translation by Isabella Kempf. Sound design and audio mix by Philip Wilson, with help from Cameron McIver. Theme music by Oliver Wickham. Voice acting by Natalia Bushnik. Special thanks to the Kollisch family for the use of Eva’s two memoirs, “Girl in Movement” and “The Ground Under My Feet”, the Sophia Smith Collection at Smith College and their “Voices of Feminism Oral History Project”, and Soundtrack New York.…
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Episode 41: Art Beyond Sight with Selene Carboni
Manage episode 464484111 series 3607368
Контент предоставлен Shaimond Foye. Весь контент подкастов, включая эпизоды, графику и описания подкастов, загружается и предоставляется непосредственно компанией Shaimond Foye или ее партнером по платформе подкастов. Если вы считаете, что кто-то использует вашу работу, защищенную авторским правом, без вашего разрешения, вы можете выполнить процедуру, описанную здесь https://ru.player.fm/legal.
In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Selene Carboni, an art educator from Italy who specializes in teaching visually impaired individuals how to create and appreciate art. Selene discusses her journey from an art historian to advocating for the artistic capabilities of blind individuals. She shares her experiences working at the Francesco Cavazza Institute for the Blind and her research on drawings made by blind individuals at the University of Toronto. The conversation explores how visually impaired people can engage in artistic activities, the stages of drawing development, and the importance of tactile art resources. Selene also highlights the inspirational stories of her students and the importance of raising awareness and educating others about the artistic potential of the visually impaired.
Contact Selene at carboniselene@gmail.com
Contact me at info@cbsyndromepodcast.com
For help with CBS call 1-704-389-0160
For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com
For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com
For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk.
For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org
The Charles Bonnet Syndrome Podcast Merchandise
https://cbsyndromepodcast.com/merchandise
We have been recognized as one of the Top 100 Visually Impaired Podcasts on the web by Feedspot.
See the full list here:
https://podcast.feedspot.com/visually_impaired_podcasts/
43 эпизодов
ПоделитьсяManage episode 464484111 series 3607368
Контент предоставлен Shaimond Foye. Весь контент подкастов, включая эпизоды, графику и описания подкастов, загружается и предоставляется непосредственно компанией Shaimond Foye или ее партнером по платформе подкастов. Если вы считаете, что кто-то использует вашу работу, защищенную авторским правом, без вашего разрешения, вы можете выполнить процедуру, описанную здесь https://ru.player.fm/legal.
In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Selene Carboni, an art educator from Italy who specializes in teaching visually impaired individuals how to create and appreciate art. Selene discusses her journey from an art historian to advocating for the artistic capabilities of blind individuals. She shares her experiences working at the Francesco Cavazza Institute for the Blind and her research on drawings made by blind individuals at the University of Toronto. The conversation explores how visually impaired people can engage in artistic activities, the stages of drawing development, and the importance of tactile art resources. Selene also highlights the inspirational stories of her students and the importance of raising awareness and educating others about the artistic potential of the visually impaired.
Contact Selene at carboniselene@gmail.com
Contact me at info@cbsyndromepodcast.com
For help with CBS call 1-704-389-0160
For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com
For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com
For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk.
For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org
The Charles Bonnet Syndrome Podcast Merchandise
https://cbsyndromepodcast.com/merchandise
We have been recognized as one of the Top 100 Visually Impaired Podcasts on the web by Feedspot.
See the full list here:
https://podcast.feedspot.com/visually_impaired_podcasts/
43 эпизодов
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In this episode of The Charles Bonnet Syndrome Podcast, Shaimond interviews Bettie Stanger-Black, who shares her journey as a caregiver for her mother who has CBS. Bettie recounts the initial signs of hallucinations, the diagnostic process, and her challenges as a caregiver. They discuss the importance of proper diagnosis, the emotional toll of caregiving, and various coping strategies. Bettie emphasizes the need for awareness, understanding, and support from medical professionals and the community. This episode provides valuable insights and practical advice for caregivers and those affected by CBS. Contact Bettie at bblack0266@gmail.com Contact me at info@cbsyndromepodcast.com For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org The Charles Bonnet Syndrome Podcast Merchandise https://cbsyndromepodcast.com/merchandise Donate…
1 Episode 42: The Journey and Mission of Mary Carmel's Light 1:16:31
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Прослушать Позже Прослушать Позже Списки Нравится НравитсяIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Eva and Kevin Potts, co-founders of Mary Carmel's Light. The organization, named in honor of their mother, was recently designated a 501(c)(3) nonprofit. They share their deeply personal and challenging journey of identifying and coping with Mary Carmel's Charles Bonnet Syndrome (CBS), including medical misdiagnoses and the lack of available resources. They discuss the importance of believing and validating the experiences of those with CBS and their caregivers, as well as the urgent need for better awareness and diagnosis procedures within the medical community. The episode also highlights Mary Carmel's Light's efforts to support people with CBS and their families, advocate for a designated billing code for CBS, and educate through support groups, helplines, and community outreach. For more information about Mary Carmel's Light or help with CBS visit https://marycarmelslight.com/ or call 704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org The Charles Bonnet Syndrome Podcast Merchandise https://cbsyndromepodcast.com/merchandise Donate…
In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Selene Carboni, an art educator from Italy who specializes in teaching visually impaired individuals how to create and appreciate art. Selene discusses her journey from an art historian to advocating for the artistic capabilities of blind individuals. She shares her experiences working at the Francesco Cavazza Institute for the Blind and her research on drawings made by blind individuals at the University of Toronto. The conversation explores how visually impaired people can engage in artistic activities, the stages of drawing development, and the importance of tactile art resources. Selene also highlights the inspirational stories of her students and the importance of raising awareness and educating others about the artistic potential of the visually impaired. Contact Selene at carboniselene@gmail.com Contact me at info@cbsyndromepodcast.com For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org The Charles Bonnet Syndrome Podcast Merchandise https://cbsyndromepodcast.com/merchandise Donate We have been recognized as one of the Top 100 Visually Impaired Podcasts on the web by Feedspot. See the full list here: https://podcast.feedspot.com/visually_impaired_podcasts/…
In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Melissa Carney, Community Outreach and Graduate Support Manager at Guiding Eyes for the Blind. Melissa shares insights into her role, the criteria for obtaining a guide dog, the training process for guide dogs, and her personal experiences as a guide dog handler. She discusses the application process, the importance of teamwork between the handler and the dog, and the benefits and challenges of using a guide dog. Melissa also touches on the use of AI in mobility aids, the personalized support Guiding Eyes provides to their graduates, and how interested individuals can take the first steps toward getting a guide dog. Guiding Eyes for the Blind Contact info: 888-987-2188 Clientexperience@guidingeyes.org Is a Guide Dog Right for Me? https://www.guidingeyes.org/is-a-guide-dog-right-for-me/ Contact Melissa at mcarney@guidingeyes.org Contact me at info@cbsyndromepodcast.com For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org The Charles Bonnet Syndrome Podcast Merchandise https://cbsyndromepodcast.com/merchandise Donate…
In this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes Phyllis Stanger, who discusses her experiences living with CBS. Phyllis describes her journey from being diagnosed with macular degeneration to later developing CBS symptoms, which include visual hallucinations. She shares the challenges she faces, such as giving up driving and coping with daily hallucinations, and offers insight into how she manages her condition. Phyllis also speaks about the role of support groups and family and emphasizes the importance of changing environments and staying involved in activities. Her story offers hope and practical advice for others living with CBS. For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org The Charles Bonnet Syndrome Podcast Merchandise https://cbsyndromepodcast.com/merchandise Donate…
In this episode of the Charles Bonnet Syndrome podcast, host Shaimond talks with Eriko Watanabe, a blind artist from Augsburg, Germany. Eriko, originally from Japan, shares her compelling journey from losing her sight due to pediatric cancer to becoming an artist specializing in tactile line drawings. Despite her blindness, Eriko creates detailed artworks using raised line drawing kits and other methods, translating her sensory experiences such as touch, sound, and smell into visual art. They discuss the unique processes behind Eriko's creations, her inspirations from traveling, and the challenges and joys of being a blind artist. Eriko emphasizes the importance of staying connected to the world and being curious, offering encouragement to listeners with visual impairments to explore their own artistic capabilities. For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org Donate…
In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. John Kennedy, a psychologist and senior investigator from the University of Toronto. Dr. Kennedy shares his extensive research on imagery, perception, and the fascinating abilities of blind individuals in creating art. He discusses his encounters with various visually impaired artists, elaborating on their experiences and his findings on Charles Bonnet Syndrome. The episode delves into the nature of visual and mental imagery, and the potential therapeutic role of art and drawing for those with visual impairments. Dr. Kennedy also highlights the importance of curiosity, passion, and continuous learning in professional and personal growth. Contact Dr. Kennedy at kennedy@utsc.utoronto.ca For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…
In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Kim Kimberley who shares her personal experiences of living with CBS after sustaining a head injury from being assaulted. She discusses the nature of her hallucinations, interactions with medical professionals, and the coping mechanisms she has developed, including the use of LED lights and support from online communities. The conversation sheds light on the challenges of diagnosing and managing CBS, as well as the importance of support and self-advocacy. Contact Kim at kimikimberley@outlook.com For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…
In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. Andrew G. Lee, a neuro-ophthalmologist and the Herb and Jene Lyman Centennial Chair of Ophthalmology at Blanton Eye Institute, Houston Methodist Hospital. They discuss Charles Bonnet Syndrome, a condition involving visual hallucinations due to vision loss, and explore why it is often misunderstood and stigmatized. Dr. Lee shares insights on the importance of awareness, patient support, and available treatments while emphasizing the need for holistic approaches and ongoing research. The conversation also touches on the role of neuro-ophthalmologists and the complexities of diagnosing and managing this condition. Dr. Lee’s YouTube Channel https://www.youtube.com/@Neuro-OphthalmologywithDrAndre Dr. Lee’s web pages https://scholars.houstonmethodist.org/en/persons/andrew-g-lee https://www.houstonmethodist.org/doctor/andrewg-lee/ For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…
1 Episode 34: CBS Researcher Aysha Kinakool 1:04:40
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Прослушать Позже Прослушать Позже Списки Нравится НравитсяIn this episode of The Charles Bonnet Syndrome Podcast Shaimond interviews doctoral candidate Aysha Kinakool from York University, the discussion covers various aspects of CBS. Topics include the complexity of studying CBS, patient experiences, and the necessity of raising awareness and education among healthcare providers. The conversation highlights the role of advanced neuroimaging techniques, such as fMRI, in understanding brain connectivity in CBS and the need for collaborative efforts in research. Diagnostic challenges and the scarcity of research in Eastern countries are also discussed. The episode emphasizes the urgent need for effective treatments and policy changes, advocating for a holistic and interdisciplinary approach to manage CBS and improve patient care globally. Contact Aysha at ayshak@yorku.ca For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…
In this episode of the Charles Bonnet Syndrome podcast, Shaimond interviews Ruth Bieber, a retired social worker and artist living with Charles Bonnet Syndrome (CBS). Bieber, who was diagnosed with legal blindness at age 6, shares her journey of losing central vision and later experiencing CBS. At 67, she reflects on her 25-year experience with CBS, during which she began seeing vivid, colorful hallucinations in her 40s. Embracing her CBS, Bieber relates her experiences to the energy fields known as chakras, influencing her art, theater work, and travels. She discusses how the syndrome's visual phenomena varied depending on her environment—from the rich colors in Calgary to the light-infused geometries of New York, and her art journey that evolved through these places. Bieber talks about her involvement in the arts, how she fosters creativity despite her vision loss, and the therapeutic power of art in giving voice to people with disabilities, as chronicled in her book 'Disability Theater from the Inside Out.' Through her narrative, she highlights how the arts can be a conduit for expressing the rich tapestry of experiences shaped by CBS and encourages listeners to connect with others in the artistic community. Contact Ruth at rbieber@ucalgary.ca Buy Ruth's Book https://www.amazon.com/Disability-Theatre-Insideout-Ruth-Bieber/dp/184991947X Check out some articles that Ruth Wrote in the Sage-ing Magazine: Issue 40: Spring 2022, Page 22. BEYOND THE HORIZON - Ruth Bieber https://www.sageing.ca/sageing40.html Issue 30: Fall 2019, Page 29. TO SEE OR NOT TO SEE: THE HEALING POWER OF THEATRE - Ruth Bieber https://www.sageing.ca/sageing30.html Issue 15: Spring 2015, Page 39. UNDER THE ARGENTINE MOON: 'BLIND SPOT' RIDING IN PATAGONIA - Ruth Bieber https://www.sageing.ca/sageing15.html Issue 8: Summer 2013, Page 38. The Right to Perform - Ruth Bieber https://www.sageing.ca/sageing8.html For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…
In this episode of The Charles Bonnet Syndrome Podcast, host Shaimond welcomes Professor Robin Walker, a cognitive neuroscientist from Royal Holloway, University of London. They discuss Dr. Walker's extensive research on visual perception and macular degeneration, and his current focus on Charles Bonnet Syndrome. The conversation delves into a reading app he developed to aid people with macular degeneration, ongoing studies on Charles Bonnet Syndrome, the effects of the COVID-19 lockdown on hallucinations, and the importance of technology and awareness in supporting those with visual impairments. Listeners are encouraged to participate in Dr. Walker's latest study to help advance understanding and treatment of this condition. The study is open to participants worldwide and can be completed virtually. To participate in Dr. Walker’s Charles Bonnet Syndrome Research Study send an email to cbs.study1@gmail.com Contact Dr. Walker at Robin.Walker@rhul.ac.uk Try Dr. Walker's EV Platform Reading Web App https://ev-platform.org/ For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…
1 Episode 31: Patient Advocate Richie Kahn 1:07:04
1:07:04 Прослушать Позже Прослушать Позже Списки Нравится Нравится1:07:04
Прослушать Позже Прослушать Позже Списки Нравится НравитсяIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Richie Kahn, a public health professional, clinical researcher, and patient advocate. Richie shares his personal journey with optic atrophy and Charles Bonnet Syndrome. With a background in public health and a passion for patient advocacy, Richie talks about his career in clinical research, his efforts to reduce inefficiencies in drug development, and his work through Canary Advisors to incorporate the patient perspective into clinical trials. Richie also discusses his coping strategies for Charles Bonnet Syndrome, the importance of laughter, running, using a white cane, and the critical need for raising awareness and education about vision loss and associated conditions. Contact Info: richie@canaryadvisorsllc.com https://www.linkedin.com/in/richiekahn/ https://www.canaryadvisorsllc.com/ For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…
In this episode of the Charles Bonnet Syndrome podcast, host Shaimond delves into Cognitive Appraisal Theory, a psychological framework that explains how our interpretations of events shape our emotional responses. He explains the two stages of cognitive appraisal—primary and secondary—and provides therapeutic techniques such as cognitive restructuring, mindfulness, and several other therapies like CBT, ACT and DBT, which can help individuals, particularly those with CBS, reframe their thoughts and improve emotional wellbeing. For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…
In this episode, Shaimond interviews Dr. Kat Da Silva Morgan from Newcastle University's Translational and Clinical Research Institute. Dr. Morgan discusses her extensive research into Charles Bonnet Syndrome (CBS), explaining her journey from psychology to neuroscience and her focus on visual hallucinations. She elaborates on the unique aspects of CBS compared to other conditions that cause hallucinations, such as Lewy body dementia and psychosis. Dr. Morgan also covers her research findings on brain activity differences in CBS patients, the potential of transcranial direct current stimulation (TDCS) as a treatment, and the challenges of conducting large-scale trials. Finally, she shares insights into the general day-to-day life of a researcher, the importance of educating medical professionals about CBS, and calls for more support and understanding for those affected by the condition. Contact Dr. Kat da Silva Morgan at kat.da-silva-morgan@ncl.ac.uk For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…
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The Charles Bonnet Syndrome Podcast
In this episode, Shaimond and guest host Duchess Antoinette McDonald-Ellis welcome cognitive neuroscientist Dr. Jennifer K Steeves from York University. Dr. Steeves discusses visual and sensory processing, emphasizing her research on Charles Bonnet Syndrome (CBS). She recounts her discovery of CBS through collaborative research and shares insights into non-invasive brain stimulation techniques like Transcranial Magnetic Stimulation (TMS) that show promise in treating visual hallucinations. Dr. Steeves elaborates on the complexities of brain function, the importance of individualized medical treatments, and explores the role of other sensory systems in compensatory vision loss. The discussion deepens into emerging medical treatments, including possible natural and holistic therapies, raising awareness about CBS within medical communities and highlighting the ongoing research to improve the quality of life for those affected. Contact Dr. Steeves at steeves@yorku.ca For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…
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The Charles Bonnet Syndrome Podcast
1 Episode 27: Living with and Researching CBS: Dr. Anica Zeyen's Dual Perspective 1:08:56
1:08:56 Прослушать Позже Прослушать Позже Списки Нравится Нравится1:08:56
Прослушать Позже Прослушать Позже Списки Нравится НравитсяIn this episode, Shaimond welcomes Dr. Anica Zeyen, a UK-based researcher who has CBS and cone-rod dystrophy. Dr. Zeyen shares her experiences with vision loss and the onset and development of her CBS symptoms. She offers insights into coping mechanisms and discusses how trust, relationships, and communication play a crucial role in managing the condition. The conversation also delves into Dr. Zeyen's extensive research on disability inclusion, her work in making public spaces more accessible, and her advocacy for disability rights across various countries. Despite dealing with nearly continuous hallucinations, Dr. Zeyen has made significant strides in academia and activism. She also discusses the challenges and benefits of using a white cane and a guide dog, her personal experiences living with a disability in different countries, and the importance of understanding individual needs in creating a more inclusive world. The episode wraps up with details about her blog, Disability Research Diary, where she shares her research and personal experiences. Read Dr Zeyen’s Blog https://drdiary.blog/ Contact Dr. Zeyen Anica.Zeyen@rhul.ac.uk For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…
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The Charles Bonnet Syndrome Podcast
In this episode, Shaimond and guest host Dr. Gary Cusick welcome Sam Seavey, an online health advocate for the blind community and owner of the popular YouTube channel 'The Blind Life.' Sam shares his journey with Stargardt's disease and how it took him decades to fully accept his visual impairment. He discusses his work at the Bluegrass Council of the Blind and his YouTube channel, The Blind Life, an invaluable resource where he shares assistive technology and tips for the visually impaired community with over 9 million views and counting. The conversation touches on the importance of accessibility, emotional support, and the transformative potential of AI and other technologies. Sam's work at the Bluegrass Council of the Blind and his contributions through his YouTube channel make him a beacon of inspiration and information in the visually impaired community. Sam’s YouTube channel https://www.youtube.com/@theblindlife Sam’s Website: www.theblindlife.net For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…
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The Charles Bonnet Syndrome Podcast
In this episode, Shaimond welcomes Nina Chesworth, a volunteer with Esme's Umbrella, to share her personal journey and insights into living with Charles Bonnet Syndrome (CBS). Nina discusses the complexities of her vision loss stemming from a viral infection and subsequent accidents, leading to her current state of blindness. She candidly describes her CBS experiences, including persistent and sometimes frightening hallucinations, and offers coping strategies such as mindfulness, yoga, and acceptance. The episode delves into the importance of support systems, education, and awareness to better manage this condition. Nina also highlights the broader efforts to raise awareness about CBS and shares information about available resources, including support groups and upcoming initiatives. 00:00 Introduction and Guest Introduction 01:14 Nina's Eye Condition and Surgeries 04:11 Experiencing Charles Bonnet Syndrome 07:26 Coping with Charles Bonnet Syndrome 11:46 Support and Awareness Efforts 20:11 Living with Hallucinations 31:27 Coping Mechanisms for Stress and Anxiety 32:45 Mindfulness Techniques for Hallucinations 33:33 Discussing the Film 'Aspectum' 37:01 Advice for Those with Charles Bonnet Syndrome 39:07 Personal Affirmations and Coping Strategies 40:27 Using Assistive Devices with Pride 43:32 The Importance of Support Groups 46:54 Raising Awareness and Seeking Help 51:57 Advice for Caregivers Contact Nina at nina@charlesbonnetsyndrome.uk or https://x.com/blind_but_sound For help with Charles Bonnet Syndrome Call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Contribute to this podcast's sustainability Donate…
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The Charles Bonnet Syndrome Podcast
In this episode, Shaimond shares a comprehensive guide to coping with Charles Bonnet Syndrome (CBS). He covers general tips, coping mechanisms, natural remedies, and innovative treatments gathered from people with CBS and experts in the medical and research field. Key topics include recognizing hallucinations, stress management, utilizing support groups, and various therapeutic techniques. Listeners are advised to consult healthcare professionals before trying any new remedies or treatments. For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Contribute to this podcast's sustainability Donate…
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The Charles Bonnet Syndrome Podcast
1 Episode 23: Lucia Ricardo from the CNIB 1:12:54
1:12:54 Прослушать Позже Прослушать Позже Списки Нравится Нравится1:12:54
Прослушать Позже Прослушать Позже Списки Нравится НравитсяIn this episode, Shaimond and Antoinette interview Lucia Ricardo, a program lead at the Canadian National Institute for the Blind (CNIB). They explore the condition's history, personal experiences, the importance of awareness among medical professionals, and the impact of peer support. Lucia shares insights into the CNIB's efforts in supporting individuals with CBS, including the creation of a support group called 'Seeing Things.' The episode also delves into the challenges caregivers face, coping mechanisms for those experiencing CBS, and the significance of spreading awareness through various platforms, including arts and academia. Contact Lucia at Lucia.Ricardo@cnib.ca For more information about the CNIB visit https://www.cnib.ca For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Contribute to this podcast's sustainability Donate…
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The Charles Bonnet Syndrome Podcast
In this episode, Shaimond interviews Vicky Hamilton, a PhD candidate performing research on Charles Bonnet Syndrome (CBS) at Griffith University, Queensland College of Art and Design in Brisbane, Australia. Hamilton shares her journey with CBS. Utilizing art and digital technology, Hamilton's research focuses on recreating the visions experienced by those with CBS, aiming for a broader understanding and awareness of the condition. The podcast explores the historical interpretation of hallucinations and the potential connections between personal experiences and hallucinations. Hamilton's research aims to create a digital and interactive exhibition to simulate CBS visions, fostering empathy and understanding among the general public and the medical community. Contact Vicky at vicky.hamilton@griffithuni.edu.au Learn more about her work at www.cbsvisions.com For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Contribute to this podcast's sustainability Donate…
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The Charles Bonnet Syndrome Podcast
In this episode, Shaimond interviews Megan Chapman, an occupational therapist specializing in low vision, from Low Vision Works in Sarasota, Florida. They discuss the role of occupational therapy in helping individuals with low vision, including those suffering from Charles Bonnet Syndrome (CBS). Chapman explains the broad scope of occupational therapy. She also shares her journey into specializing in low vision, the impact of CBS on patients' lives, and ways to manage its symptoms. Key to her approach is educating patients about CBS to alleviate fear and isolation, advocating for greater awareness among healthcare professionals, and improving patients' quality of life through tailored therapy sessions. Contact Meagan at mwilson@lowvisionworks.com Contact Low Vision Works http://lowvisionworks.com/ or 941-366-0011 For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Contribute to this podcast's sustainability Donate…
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The Charles Bonnet Syndrome Podcast
In this episode, Shaimond and guest co-host Dr. Gary Cusick interview graphic novelist and researcher Gareth Brookes. Brookes discusses his graphic novel, “A Thousand Coloured Castles” which features a main character with Charles Bonnet syndrome (CBS). Inspired by his grandmother's experiences with the condition, Brookes aims to raise awareness and empathy by portraying the visual hallucinations associated with CBS. He describes the nuances of CBS and its impact on people living with the condition and their families. The conversation also covers Brookes' research into comics, his creative process, and the potential of graphic novels in educating about medical conditions. Learn more about Gareth at https://www.gbrookes.com/ Purchase A Thousand Coloured Castles here https://www.amazon.com/Thousand-Coloured-Castles-Graphic-Medicine/dp/0271079274 For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Contribute to this podcast's sustainability Donate…
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The Charles Bonnet Syndrome Podcast
In this episode, Shaimond interviews Dr. Jasleen Jolly, Associate Professor in Vision and Eye Research at Anglia Ruskin University in Cambridge, England and Director of Jolly Vision Science. Dr. Jolly discusses her extensive work and research on Charles Bonnet Syndrome. She explains the misconceptions about the syndrome, its prevalence and highlights the importance of asking patients proactively about symptoms to overcome the stigma that might prevent them from coming forward. Additionally, she touches on her motivations for founding Jolly Vision Science and the need for greater inclusion and diversity in the medical field. Dr. Jolly offers practical advice for people with CBS and healthcare professionals aiming to raise awareness and improve patient care for this often misunderstood condition. Visit Dr. Jolly’s website at https://jollyvisionscience.com/ or follow her on X(Formerly Twitter) @JKJolly4 For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Contribute to this podcast's sustainability Donate…
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The Charles Bonnet Syndrome Podcast
1 Episode 18: Scot Muirden from the Charles Bonnet Syndrome Foundation 1:25:41
1:25:41 Прослушать Позже Прослушать Позже Списки Нравится Нравится1:25:41
Прослушать Позже Прослушать Позже Списки Нравится НравитсяIn this episode, Shaimond interviews Scot Muirden, Director at Charles Bonnet Syndrome Foundation AU. He explains the mission of the Foundation, which includes providing direct services to those affected by CBS and raising awareness within the medical and healthcare sectors. The conversation covers the importance of a multidisciplinary approach to diagnosis and support, potential triggers of CBS, and strategies for managing symptoms. Additionally, Scot emphasizes the need for more research on CBS, including its causes and potential treatments. The episode also touches on the difficulties faced by caregivers and the importance of self-care and reaching out for support. Contact Scot at scot@charlesbonnetsyndrome.org Visit the Charles Bonnet Syndrome Foundation AU’s website https://www.charlesbonnetsyndrome.org/ For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Contribute to this podcast's sustainability Donate…
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The Charles Bonnet Syndrome Podcast
In this episode, Shaimond interviews Robin Davies who is totally blind and shares his journey with Best disease and Charles Bonnet Syndrome. The episode emphasizes resilience, the value of community and support, and how remaining engaged with life and passions can help navigate the challenges of visual impairment and Charles Bonnet syndrome. Contact Robin at robindavies18@gmail.com For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Contribute to this podcast's sustainability Donate…
In this episode, Shaimond interviews Chris Wilsdon a representative from the Kent Association for the Blind, to discuss Charles Bonnet Syndrome (CBS) and how his organization supports the visually impaired in Kent and parts of London, UK. Wilsdon shares his personal journey from experiencing vision problems to dedicating over 15 years to aiding those with vision impairments. The episode highlights the collaborative efforts within the sight loss community, the significance of addressing CBS openly, and the impact of cognitive therapies and medication adjustments on managing CBS hallucinations. Contact Chris Wilsdon at chris.wilsdon@kab.org.uk For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Contribute to this podcast's sustainability Donate…
In this episode, Shaimond interviews Tanya Straker, who shares her journey as a caregiver and discusses her book “6 Life Hacks For Family Caregivers,” her weekly caregiver support group, Coffee with Caregivers, and shares tips to help caregivers manage, among other things she does to support people on their journey to being their best self. For more information about Tanya and for a link to join her support group, Coffee with Caregivers visit https://tanyastraker.com Contact Tanya at tstraker@outlook.com For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Contribute to this podcast's sustainability Donate…
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The Charles Bonnet Syndrome Podcast
In this episode, Shaimond and Eva interview Susan Michel who shares her journey with Retinitis Pigmentosa, Macular Degeneration and Charles Bonnet Syndrome. For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Contribute to this podcast's sustainability Donate…
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