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Spondycast

The Spondylitis Association of America (SAA)

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Introducing Spondycast, the newest and most exciting source of information and inspiration for people with spondyloarthritis. Every week, we bring you in-depth conversations with the leading experts in the field, who will share their knowledge and experience on topics related to the diagnosis, treatment, and management of this complex condition. Whether you are a patient, a caregiver, or just someone who wants to learn more about spondyloarthritis, Spondycast is the perfect place for you. Sp ...
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Robin Dore, MD, rheumatologist and member of SAA’s Advocacy Committee, discusses how patients can advocate for themselves while working with their physicians and health insurance to get needed healthcare.
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Ultramarathon runners and endurance athletes Helgi Olafson and Brandon Robert Hozack discuss their journey with spondyloarthritis, their advocacy and awareness efforts, and how they overcome their challenges with AS.
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Jennifer Visscher, Founder of the annual Walk Your AS Off event discusses her journey with spondyloarthritis, her advocacy and awareness efforts, and transitioning the Walk Your AS Off event to SAA’s stewardship. www.walkyourasoff.com
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Dr. Taylor Chastain Griffin, National Director of AAI Advancement for Pet Partners, discusses the connection between animal-assisted interventions and mental and physical health benefits for people living with SpA. www.petpartners.org www.aaaiponline.org
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John Frazier, physical trainer and author of the book Through the Pain, discusses his journey with AS and how it has impacted his own physical fitness and his work with others. Link to book: Through the Pain by John Frazier https://a.co/d/2T9YetV
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Dr. Christina Downey, rheumatologist, and Chair of the Government Affairs Committee for the American College of Rheumatology, explains step therapy, its challenges for SpA patients, and strategies to get the medications you need. https://spondylitis.org/advocacy/ www.steptherapy.com
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Heidi Waltz, patient advocate and SAA educational support group leader, discusses her journey with SpA and how she became involved in peer support groups. https://spondylitis.org/resources-support/support-resources/support-groups/
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Bruce Pierce, an advocate for the SpA community, discusses how his family turned a tragedy into an opportunity to educate first responders and anesthesiologists about the potential dangers of intubation for those with SpA. https://spondylitis.org/resources-support/educational-materials-resources/for-medical-professionals/for-anesthesiologists/ http…
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Afton Hassett, PsyD, author of “Chronic Pain Reset” and Licensed Clinical Psychologist and Pain Researcher, discusses the science behind pain and the activities, skills, and practices that can help improve how you experience chronic pain to help you thrive.
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Doctor of Physical Therapy and certified Feldenkrais practitioner Stacy Barrows teaches listeners about the Feldenkrais Method and how it can help listeners improve their mobility and reduce pain. https://feldenkrais.com/ Additional links: Smartroller: https://www.smartroller.net Upcoming talk for therapists; since it is on Zoom available to therap…
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Rosalind Joffe, the “Chronic Illness Career Coach,” discusses how people impacted by spondyloarthritis can navigate workplace challenges and advocate for their needs. https://cicoach.com/ Chronic illness, workplace, work, employment, invisible disease, disclosure, diversity, inclusion, disability, accommodations, ADA…
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Iris Zink, Rheumatology Nurse Practitioner and Author of Sex Interrupted: Igniting Intimacy while Living with Illness or Disability, discusses how SpA impacts intimacy and relationships and provides strategies to navigate this journey.
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