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Shining a Light: Rare Disease Day Special with Gale & Landon
Manage episode 403740220 series 3498731
Контент предоставлен Gale Jones & Christina Garretson, Gale Jones, and Christina Garretson. Весь контент подкастов, включая эпизоды, графику и описания подкастов, загружается и предоставляется непосредственно компанией Gale Jones & Christina Garretson, Gale Jones, and Christina Garretson или ее партнером по платформе подкастов. Если вы считаете, что кто-то использует вашу работу, защищенную авторским правом, без вашего разрешения, вы можете выполнить процедуру, описанную здесь https://ru.player.fm/legal.
In honor of Rare Disease Day, join us for a special episode shedding light on our family experience of our Son living with a rare disease. From the challenges of diagnosis to navigating treatment options and advocating for research, this episode explores the often overlooked world of rare diseases. Gale & Landon will share how their family has been affected by rare conditions, as they share their journeys, triumphs, and the importance of awareness and support. Tune in to gain insight into the resilience, courage, and hope within the rare disease community, and discover how we can all play a part in making a difference.
The Stag1 foundation website we talked about is STAG1 Stories - STAG1 Gene Foundation. Please check it out and consider helping this foundation with reaching more families that need assistance navigating this difficult transition in life.
Music intro & exit credit: Miami Sunset-JAK @RFM_NCM Radio
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