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Episode 2 - "One in a Million"
Manage episode 395624370 series 3538655
Контент предоставлен European Federation of Neurological Associations (EFNA). Весь контент подкастов, включая эпизоды, графику и описания подкастов, загружается и предоставляется непосредственно компанией European Federation of Neurological Associations (EFNA) или ее партнером по платформе подкастов. Если вы считаете, что кто-то использует вашу работу, защищенную авторским правом, без вашего разрешения, вы можете выполнить процедуру, описанную здесь https://ru.player.fm/legal.
Did you know that there are over 400 different neurological conditions? The vast majority of these conditions are extremely rare, making them difficult to diagnose and treat. From a lack of available specialists, to fragmented care pathways, there are too many gaps in healthcare systems for people living with a rare neurological disease to fall through.
In this episode of Brain Health Matters, we’ll hear from three people across Europe living with different rare neurological conditions. We’ll also hear from Astri Arnesen, President here at the European Federation of Neurological Associations (EFNA), who will tell us what organisations like EFNA, along with policy-makers, are doing to counter the challenges faced by the rare disease community.
The Brain Health Matters podcast is written and produced by Elizabeth Cunningham, on behalf of the European Federation of Neurological Associations, with support from Roche, Novartis, Merck, Alexion and Horizon Therapeutics.
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