Episode 338: Inside MS Advocacy and This Year's Public Policy Conference with Steffany Stern

RealTalk MS

You've probably heard me say more than once that the things people affected by MS want most -- access to quality healthcare, affordable prescription medications, and funding for MS research -- are, to a large extent, all functions of public policy. The people who decide whether we get these things are our elected officials. That's why advocacy is so critically important.

The National MS Society's Public Policy Conference gets underway on March 4th, and joining me with a preview of this year's conference is the MS Society's Vice-President of Advocacy, Steffany Stern.

We're also taking a deep dive into a paper just published by a group of MS experts detailing the current status of progressive MS research, identifying lessons learned along the way, and calling out the remaining challenges to better understanding MS progression.

We're sharing the details of how and where to register for this week's global webcast being hosted by the International Progressive MS Alliance.

And I'm remembering my wife, Jeanne, on the fourth anniversary of her passing.

We have a lot to talk about! Are you ready for RealTalk MS??!

Jeanne's Story :22

This Week: Inside MS advocacy and this year's Public Policy Conference 8:36

Experts publish an update on progressive MS research, identify lessons learned, and call out the remaining challenges 9:35

The International Progressive MS Alliance hosts a global webcast this Thursday 17:22

MS Society's Vice-President of Advocacy, Steffany Stern, gives us a peek at this year's Public Policy Conference 18:54

Share this episode 31:51

Have you downloaded the free RealTalk MS app? 32:10

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society: Become an MS Activist https://nationalmssociety.org/advocacy

PAPER: Clinical Trials for Progressive Multiple Sclerosis: Progress, New Lessons Learned, and Remaining Challenges https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(24)00027-9/abstract

RealTalk MS Episode 280: How the Proposed Framework for Diagnosing and Treating MS Will Affect You with Dr. Tim Coetzee https://realtalkms.com/280

RealTalk MS Episode 193: Managing the Emotional Fallout of the Pandemic with Dr. Gayle Lewis https://realtalkms.com/193

WEBCAST: New Treatments for Progressive MS: Recent Advances and Promising Research https://www.msif.org/treatments-webcast/

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RealTalk MS Episode 338 Guest: Steffany Stern

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