Лучшие подкасты про Lupus Advocacy (2024)

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Season 4 | Episode #3 with Functional Medicine Health Practitioner, and Certified Naturopathic Practitioner, Tiffany Kaloustian 28:57

9d ago28:57

28:57

Season FOUR Episode THREE of the Your Story Our Fight® podcast welcomes Tiffany Kaloustian. Functional Medicine Health Practitioner, and Certified Naturopathic Practitioner. Tiffany's personal journey battling severe lupus has fueled her passion for helping others find their path to wellness. She is well versed in a variety of holistic healing moda…

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Season 4 | Episode #2 with Nurse Practitioner, Charissa Barsos 21:50

22d ago21:50

21:50

Season FOUR Episode TWO of the Your Story Our Fight® podcast welcomes Charissa Barsos. Charissa is a nurse practitioner with over 15 years of medical experience. She graduated with her BSN from Millikin University in Decatur, IL, in 2010 and worked as a cardiothoracic surgery RN for 5 years. Charissa graduated with her FNP from Olivet Nazarene Univ…

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Author of “Finding A New Normal: Living Your Best Life with Chronic Illness”: Suzan Jackson 49:39

24d ago49:39

49:39

Monica Michelle is joined by author Sue Jackson. Sue lives with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Lyme disease. In this episode, Monica and Sue discuss: Sue’s pathway to diagnosis Parenting with chronic illness and parenting a child with chronic illness Managing ME/CFS from diagnosis to creating routines Using books to…

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Season 4 | Episode #1 with Integrative Nutrition Health Coach and Lupus Patient, Elizabeth Lo Serro 29:59

1M ago29:59

29:59

Season FOUR Episode ONE of the Your Story Our Fight® podcast welcomes Elizabeth Lo Serro. As a certified Integrative Nutrition Health Coach, Elizabeth helps clients alleviate fatigue, pain, and rashes while promoting the growth of beautiful, healthy hair. Through her unique approach, Elizabeth empowers people to feel energized, resilient, and radia…

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Using Self-Portraits to Represent Chronic Pain 1:00:29

1M ago1:00:29

1:00:29

Monica Michelle is joined by artist Kyrianna Bolles. Kyrianna lives with chronic pain. In this episode, Monica and Kyrianna discuss: Kyrianna’s struggle to be accommodated for her pain throughout school years How Kyrianna uses her portraits to help represent other’s chronic conditions The communities Kyrianna has built, from a college support group…

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Dory’s Corner: New Podcast intro with Host Nick Clemmons 1:00:25

2M ago1:00:25

1:00:25

Monica Michelle is interviewed by consultant and content creator Nick Clemmons. Nick recently started the blog Dory’s Corner with Invisible Not Broken. A companion podcast hosted by Nick will be released soon. Nick lives with Sickle Cell Disease. Monica lives with Ehlers-Danlos Syndrome, POTS, MCAS, and Fibromyalgia. In this episode, Nick and Monic…

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Season 3 | Episode #18 with Musician, Lupus Advocate and Lupus Patient, Dion Langley 31:59

4M ago31:59

31:59

Season THREE Episode EIGHTEEN of the Your Story Our Fight® podcast welcomes Dion Langley. Dion was born and raised in Portsmouth, Va. He was diagnosed with Systemic Lupus Erythematosus ( SLE ) in 2010. Dion decided to use his career as a professional drummer as an avenue to promote Lupus advocacy. Dion also established the #BeatLupus organization a…

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Season 3 | Episode #17 with Board member of the Lupus Research Alliance, Lupus Advocate and Lupus Patient, Molly McCabe 25:49

4M ago25:49

25:49

Season THREE Episode SEVENTEEN of the Your Story Our Fight® podcast welcomes Molly McCabe. Molly McCabe began her career at the young age of 16 when she joined the inaugural board for the Kids Making Miracles program at Doernbecher Children’s Hospital. She also was part of the founding family that created Potluck in the Park in 1993 where she serve…

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Season 3 | Episode #16 with Advocate, Educator, and Founder of Lupus In Color, Racquel Dozier 30:25

5M ago30:25

30:25

Season THREE Episode SIXTEEN of the Your Story Our Fight® podcast welcomes Racquel Dozier. Racquel H. Dozier is a passionate lupus advocate, educator, and the founder of Lupus In Color. Her mission is to educate, inspire, encourage, and empower lupus warriors and their supporters worldwide. Through Lupus In Color, Racquel advocates for lupus warrio…

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Season 3 | Episode #15 with Spoken Word Poet, Singer, Education Consultant, and Lupus Patient, Shanelle Gabriel 31:51

5M ago31:51

31:51

Season THREE Episode FIFTEEN of the Your Story Our Fight® podcast welcomes Shanelle Gabriel. Shanelle Gabriel is a spoken word poet, singer, education consultant, and lupus warrior from Brooklyn, NY. She has shared her fusion of poetry and soulful singing in esteemed venues from The Vatican to Lincoln Center, and has penned and featured in national…

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Disability Access in the Education System and How to Support Disabled Folks’ Needs with Nick Clemmons 54:05

5M ago54:05

54:05

Monica Michelle is joined by consultant and podcast host Nick Clemmons. Nick lives with Sickle Cell Disease. In this episode, Monica and Nick discuss: The ways disabled folks are often forgotten in education infrastructure How Nick navigates societal limitations to achieve his goals Disability representation in the media Knowing how to realisticall…

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Season 3 | Episode #14 with Founder and Chief Executive Officer of LupusChat, Tiffany Peterson 27:59

6M ago27:59

27:59

Season THREE Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Tiffany Peterson. Tiffany is a New York City-based patient advocate whose inspiration arose from her battles within the healthcare system following her diagnosis of systemic lupus erythematosus in 2010. She is the Founder and Chief Executive Officer of LupusChat, a patient/…

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Collections by Michelle Brown-Blog Radio wsg Author, Activist C. Imani Williams 1:00:00

6M ago1:00:00

1:00:00

C. Imani Williams will always be a Detroiter even though she currently resides in Las Vegas. She returns as a guest to talk about her latest book "Seven Years in A Vegas" a follow-up to her book "Rootwork: Triumph Over Trauma" and building safe spaces in Las Vegas' arts community. This queer Black Womanist is a certified creative artist and holisit…

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Vulnerability, Resiliency, and Advocacy with Tim Reitsma 47:06

6M ago47:06

47:06

Monica Michelle is joined by consultant and podcast host Tim Reitma. Tim lives with Crohn's Disease. In this episode, Monica and Tim discuss: Tim’s resiliency through managing his Crohn’s The importance of self-advocacy, especially in the workplace Tim’s podcast why he shares stories of those with invisible illness TIMESTAMPS 00:47 - Tim's diagnosi…

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Season 3 | Episode #13 with Artist, Mother and Lupus Advocate, Donna Jordan 39:35

6M ago39:35

39:35

Season THREE Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Donna Jordan. Born in the vibrant city of Newark, NJ in 1956, Donna emerged as an artist nurtured by the rich tapestry of culture and creativity surrounding her. From an early age, her parents encouraged her artistic freedom, leading her to immerse herself in every art prog…

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Season 3 | Episode #12 with Graphic Designer, Influencer and Lupus Patient, Seda Bryant 34:16

7M ago34:16

34:16

Season THREE Episode TWELVE of the Your Story Our Fight® podcast welcomes Seda Bryant. Seda Bryant is an overcomer, mother, graphic designer, storyteller & influencer. She’s using her gifts to turn pain into purpose. She created the first digital stickers for all social media platforms for stories, video reels, Tik Toks & Snaps for Lupus Awareness …

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Collections by Michelle Brown-Blog Radio wsg Tracee McDaniel 1:06:00

7M ago1:06:00

1:06:00

Tracee McDaniel is the Founder and Executive Director of Juxtaposed Center for Transformation Inc - an anchoring organization for Trans housing Atlanta Program.. Her talents extend beyond her advocacy for the Transgender community. She is currently working for safe, affordable housing not just for members of the Transgender community but any one in…

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Tech and Disability: What VR Offers the Disabled Community with Sunny Ammerman 1:10:27

7M ago1:10:27

1:10:27

Monica Michelle is joined by artist and disability advocate Sunny Ammerman Sunny lives with Septo-optic dysplasia, panhypopituitarism, Optic Nerve Hypoplasia, and is missing a membrane in the brain called the "septum pellucidum". In this episode, Monica and Sunny discuss: Sunny’s complex disorders and how she copes with them Everything VR provides …

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Season 3 | Episode #11 with Realtor, Salon Owner, Philanthropist and Lupus Patient, Kim Peacock 1:09:51

7M ago1:09:51

1:09:51

Season THREE Episode ELEVEN of the Your Story Our Fight® podcast welcomes Kim Peacock. Realtor, Salon Owner, Philanthropist, wife, and mother of four amazingly beautiful children. Kim was diagnosed with Lupus in 2008, Rheumatoid Arthritis in 2019, just to name a few life altering chronic illnesses. Kim, age 53, was born and raised in Santa Monica C…

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Collections by Michelle Brown wsg Author Marques Coley 1:02:00

7M ago1:02:00

1:02:00

Marques Coley was born in Carlsbad, CA but Michigan has been home most of his life. The oldest of four children, he always knew he was different but just didn't know how. His journey to self-discovery began at a young age and has been journaling since he was fourteen. Inspired by his 8th grade teacher, he learned different styles of writing and inc…

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Reporting on Chronic Illness and Disability with Journalist Julia Metraux 39:16

8M ago39:16

39:16

Monica Michelle is joined by Journalist Julia Metraux. Julia lives with vasculitis, mild to moderate hearing loss, and has experienced long COVID. In this episode, Monica and Julia discuss: Julia's diagnosis with vasculitis and how it influences her journalistic lens How community impacts the mental health of those with chronic illness How Julia an…

1
Collections y Michelle Brown-Blog Radio wsg Karen Kendra Holmes 1:11:00

8M ago1:11:00

1:11:00

Karen Kendra Holmes has been showing up and making a difference in her community not just as a member of the transgender community but most of her life. Being of service to others is just what she does! When not speaking publicly, Karen continues working with local police departments helping to bring dignity and respect to police interactions with …

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Season 3 | Episode #10 with Certified Holistic Nutritionist, Autoimmune Nutrition Specialist, Fitness Coach, Forager and Lupus Patient, Genny Mack 30:54

8M ago30:54

30:54

Season THREE Episode TEN of the Your Story Our Fight® podcast welcomes Genny Mack. Genny Mack’s mission is to empower women to redefine what ‘eating good’ means and to thrive by prioritizing the whole self. Genny transformed her overall well-being, after being diagnosed with lupus and kidney nephritis, by transitioning to eating whole nourishing fo…

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Author of “Pain: The Ultimate Mentor,” Physiotherapist Kevin Hunt 31:29

8M ago31:29

31:29

Monica Michelle is joined by author & physiotherapist Kevin Hunt. Kevin lives with chronic pain. In this episode, Monica and Kevin discuss: Kevin’s philosophy of pain management as a physiotherapist who experiences chronic pain. The Hexagon Model, a life-management tool for focusing on what’s important to you. Kevin’s idea behind his new book. Usin…

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Season 3 | Episode #9 with Student, Lupus Advocate and Lupus Patient, Sam Gehrls 29:40

9M ago29:40

29:40

Season THREE Episode NINE of the Your Story Our Fight® podcast welcomes Samantha Gehrls. Samantha Gehrls is a Lupus fighter and advocate who resides in Phoenix, Arizona. Sam is 27 years old and was diagnosed with Lupus when she was 25, but has been sick since she was 20. Sam is passionate about helping others get through difficult times and diagnos…

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Author of “Through the Pain: The Silent Suffering & Triumph of a Personal Trainer”: John K. Frazier 28:35

9M ago28:35

28:35

Monica Michelle is joined by author & personal trainer John K. Frazier. John lives with ankylosing spondylitis. In this episode, Monica and John discuss: John’s work as a physical trainer and author Chronic pain comparisons Personal triumph TIMESTAMPS 00:50 - John’s business & diagnosis 07:19 - Chronic pain olympics 09:31 - Talking about & hiding a…

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Season 3 | Episode #8 with Author and Lupus Patient, Amanda Chay with Professional in Sports Management and Lupus Patient, Ahnna Chay 31:18

9M ago31:18

31:18

Season THREE Episode EIGHT of the Your Story Our Fight® podcast welcomes Amanda and Ahnna Chay. Amanda Chay is a lupus warrior and author of “The Girlfriend’s Guide to Lupus”. Her book serves as a beacon of hope for women grappling with lupus, providing practical, health-focused steps that empower them to prioritize their well-being. Amanda's oldes…

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The Creative Process, Self Worth, and Dating with Disability: Laura Mustard 31:08

10M ago31:08

31:08

Monica Michelle is joined by musician Laura Mustard. Laura lives with VATER syndrome. In this episode, Monica and Laura discuss: Laura’s inspiration for her upcoming musical EP. How Laura’s illness impacted her recent relationship & self-image. Laura’s creative process, new music, and social media pressure. TIMESTAMPS 00:30 - Laura’s new EP / Monic…

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Author of “The Girlfriend’s Guide to Lupus”: Amanda Chay 30:43

10M ago30:43

30:43

Monica Michelle is joined by author Amanda Chay. Amanda lives with Sjögren’s and Lupus. In this episode, Monica and Amanda discuss: Amanda’s book & diagnosis Outlooking on work & writing Navigating chronic illness with kids & family TIMESTAMPS 00:26 - Intro + The Girlfriend’s Guide to Lupus 02:17 - Amanda’s diagnosis 10:09 - Amanda’s outlook on wri…

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Season 3 | Episode #7 with Student and Lupus Patient, Eve McAusland & CPA and Mother Margi McAusland 25:02

10M ago25:02

25:02

Season THREE Episode SEVEN of the Your Story Our Fight® podcast welcomes Eve and Margi McAusland. Eve is a 15 year old sophomore at Notre Dame Academy who has had lupus sense she was 13. Her mom, Margi, is a CPA and has had Sjogrens since 2019. Eve has been working through her diagnosis by finding ways to take care of herself through her web of sup…

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Author of “Compass Points the Way”: Alexis Kline 23:14

11M ago23:14

23:14

Monica Michelle is joined by author Alexis Kline. Alexis lives with Dysautonomia. In this episode, Monica and Alexis discuss: Being a sick teenager Having an isolated diagnosis Productivity workflows TIMESTAMPS 00:28 - Alexis’s diagnosis & dog 07:18 - Sick teenager road map 10:00 - Alexis’s book & workflow 16:25 - Having an isolated diagnosis 20:50…

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Season 3 | Episode #6 with Influencer, Healthcare Worker and Lupus Patient, Sharan Singh 27:20

11M ago27:20

27:20

Season THREE Episode SIX of the Your Story Our Fight® podcast welcomes Sharan Singh. Sharan is a twenty-three year old UC Irvine graduate, a current healthcare worker, Content Creator on TikTok, Lupus Advocate/Warrior and a future Physician Assistant. Sharan is passionate about working in the field of Rheumatology in the future as a healthcare prov…

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Author of “From the Sidelines to the Finish Line”: Emily Falcon 36:47

11M ago36:47

36:47

Monica Michelle is joined by author Emily Falcon. Emily lives with ALCAPA. In this episode, Monica and Emily discuss: Growing up sick Post-surgery support Having a public body Self-motivation and adventuring TIMESTAMPS 00:28 - Being a sick kid & Emily’s book title 07:28 - Mortality 10:16 - Portrayal of disability in media 12:21 - Post-surgery suppo…

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Collections by Michelle Brown-Blog Radio wsg Jay Kaplan 58:00

11M ago58:00

58:00

Jay Kaplan has been the staff attorney for the ACLU of Michigan's LGBTQ+ Project since its founding in 2001. He has worked on cases including challenging undercover sting operations targeting gay men, fighting Michigan's constitutional amendment prohibiting same-sex marriage in 2004, defending the validity of second parent adoptions in Michigan and…

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Season 3 | Episode #5 with EVP of Drama Series at NBCUniversal and Lupus Patient, Cara Dellaverson 36:31

11M ago36:31

36:31

Season THREE Episode FIVE of the Your Story Our Fight® podcast welcomes Cara Dellaverson. Cara Dellaverson joined NBC in 2015 as Senior Vice President of Drama Development and was promoted to Executive Vice President for the network in 2018. In 2020 she was elevated to EVP of Drama Series across all platforms including NBC, Peacock, USA and SYFY. I…

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Spilling the Tea on Collections by Michelle Brown - Blog Radio 40:00

11M ago40:00

40:00

It's been a tough couple of years. COVID, some health issues and life caused us to take a break, go on hiatus, stop the conversations. But Collections by Michelle Brown - Blog Radio is back and ready to bring you the stories of individuals living between the lines, standing boldly in the crosshairs of their intersectionality and creating change, Wh…

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A 26-Year Search for the Right Diagnosis: Micaela Hoo 35:19

12M ago35:19

35:19

Monica Michelle is joined by writer and entrepreneur Micaela Hoo. Micaela lives with Lyme disease, bartonella, babesia, mold toxicity, parasite overgrowth, candida overgrowth, Hashimoto's disease, and Morgellons disease. In this episode, Monica and Micaela discuss: Micaela's diagnosis story Healthcare insurance TIMESTAMPS 00:24 - The start of Micae…

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Patience, Productivity, and the “Push Through Pain” Mindset: Rita White 28:46

12M ago28:46

28:46

Monica Michelle is joined by physical therapist Rita White. Rita lives with Ehlers-Danlos syndrome, Mast Cell Activation syndrome, and POTS. In this episode, Monica and Rita discuss: Rita’s work as a physical therapist Toxic productivity mentality Happiness from self-understanding and patience TIMESTAMPS 00:38 - Rita’s diagnosis and job 04:58 - “pu…

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Season 3 | Episode #4 with Model, Actress, Lupus Patient & Advocate, Kay Daniels 27:03

12M ago27:03

27:03

Season THREE Episode FOUR of the Your Story Our Fight® podcast welcomes Kay Daniels. Kay is a 25 year old independent model & actress, Lupus patient and advocate. At the age of 14, Kay was diagnosed with Lupus SLE. It has always been an aspiration of Kay's to have the opportunity of sharing my story with the world, to better relate with other young…

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Season 3 | Episode #3 with Yoga Athlete, Instructor, Model, Influencer, Lupus Patient & Advocate, Victoria Gibbs 28:11

1y ago28:11

28:11

Season THREE Episode THREE of the Your Story Our Fight® podcast welcomes Victoria Gibbs. Victoria began practicing yoga ten years ago and from the first time that she stepped onto her mat, her passion was evident; shaping her into the woman she is today. Victoria is a Dartmouth College graduate, a former financier turned health and wellness entrepr…

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Navigating Work, Relationships, and Parenting with Epilepsy: Sara Staggs 32:09

1y ago32:09

32:09

Monica Michelle is joined by author Sara Staggs. Sara lives with epilepsy. In this episode, Monica and Sara discuss: Being a full-time creative with a disability Pregnancy & parenting Disability disclosure Chronic illness in media TIMESTAMPS 00:30 - Sara’s writing process 06:03 - Sara’s diagnosis & college 09:44 - Pregnancy & parenting 13:37 - Disa…

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Season 3 | Episode #2 with Founder and CEO of Bare Bodhi & Lupus Patient, Ashley Greene 23:10

1y ago23:10

23:10

Season THREE Episode TWO of the Your Story Our Fight® podcast welcomes Ashley Greene. Ashley Greene is the Founder and CEO of Bare Bodhi. Growing up in a salon with a hairdresser mother, Ashley developed a passion for beauty early on. While assisting one of the biggest names in the industry, Ashley was diagnosed with lupus, which prompted her to em…

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Talking TV, Reading, Happiness, and Parenting: Dione Bullard 36:47

1y ago36:47

36:47

Monica Michelle is once again joined by musician, chef, and activist Dione Bullard. Dione lives with End Stage Renal Disease. In this episode, Monica and Dione discuss: Favorite TV shows Favorite books Moments of delight Parenting TIMESTAMPS 02:20 - Platonic 11:42 - Somewhere Boy 14:09 - More favorite shows 21:38 - Favorite books 26:17 - Appreciati…

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Season 3 | Episode #1 with Cyber Security Program Manager, Board Member of EMT Advisory Board, Lupus Advocate & Lupus Patient, Shamekka Marty 29:16

1y ago29:16

29:16

Season THREE Episode ONE of the Your Story Our Fight® podcast welcomes Shamekka Marty. In 2012, Shamekka was diagnosed with Lupus, Scleroderma, Mixed Connective Tissue Disease, Reynaud’s, and Sjogren’s Syndrome. Shamekka seeks to motivate others who are in the same boat as her. She speaks on various public platforms, has a blog, a vlog , provides c…

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Adulting on Disability Income, Reflecting on Privilege and Prejudice: Cosmo 38:12

1y ago38:12

38:12

Monica Michelle is joined by activist Cosmo C. Cosmo lives with porphyria, Ehlers-Danlos syndrome, and fibromyalgia. In this episode, Monica and Cosmo discuss: Pets LARPing Disability income and surviving on it Privilege and Prejudice TIMESTAMPS 00:33 - Cats and LARPing 12:05 - Adulting on disability income 22:01 - Privilege and prejudice 31:19 - D…

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Collections by Michelle Brown-Blog Radio wsg Wyatt O'Brian Evans 1:05:00

1y ago1:05:00

1:05:00

Wyatt O'Brian Evans is a Journalist. Author. Radio Personality. Intimate Partner Violence & Abuse (IPV/A) Subject Matter Expert (SME), Advocate and Speaker. Voice-over (V/O) Instructor and Talent is currently celebrating the release of his latest novel “Shattered!” The latest installment in the Nothing Can Tear Us Apart series. Wyatt is the quintes…

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Resilience & Self-Advocacy in Health, Music, and Culinary Arts: Dione Bullard 41:42

1y ago41:42

41:42

Monica Michelle is joined by musician, chef, and activist Dione Bullard. Dione lives with End Stage Renal Disease. In this episode, Monica and Dione discuss: End Stage Renal Disease Self Advocacy as a Patient Dion’s Music & Cooking TIMESTAMPS 06:17 - Dion’s diagnosis 14:44 - Music career & food 21:42 - Self advocacy 26:05 - Disparities in care of d…

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Chronic Pain, Opioid Hysteria, and Tech Tools for Advocacy: Kim Luke 41:50

1y ago41:50

41:50

Monica Michelle is joined by activist Kim Luke. Kim lives with multilevel spondylosis, POTS, and fibromyalgia. In this episode, Monica and Kim discuss: Kim’s story Pain clinic negligence Disability tech & advocacy TIMESTAMPS 00:51 - How Kim started 10:54 - Kim’s work 16:03 - Pain clinic negligence 19:33 - Healthcare in politics 27:08 - Recommendati…

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Fighting for Disability in Law, in the Entertainment Industry, and in a Pandemic Society: Julia Irzyk 35:32

1+ y ago35:32

35:32

Monica Michelle is joined by lawyer, author, comedian, and activist Julia Irzyk. Julia lives with Lupus, Osteoarthritis, Degenerative Disk Disease, and Fibromyalgia. In this episode, Monica and Julia discuss: The state of COVID-19 in 2023 Julia's new book, "Disabilities and the Law, 4th Edition" The entertainment industry Access to pain medication …

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Charcot Marie Tooth Disease, Scoliosis, and Accessible Tech: Lisa Weiner 33:35

1+ y ago33:35

33:35

Monica Michelle is joined by activist Lisa Weiner. Lisa lives with Charcot Marie Tooth Disease and Scoliosis. In this episode, Monica and Lisa discuss: Growing up with CMT and Scoliosis Dealing with braces Living and moving around San Francisco with a chronic illness Finding community resources Discovering simple tools that can help with daily acti…

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