Everyone Has a Place

Bringing Sickle Cell Disease to Life

Not enough hematologists specialize in sickle cell disease (SCD) to reach all the people who need care. Host Dr. Wally Smith talks with Dr. JJ Strouse about outreach programs he has developed to reach individuals in rural communities. SCD expert care provider and researcher Dr. Michael DeBaun describes how he involves physicians from many other disciplines to treat people with SCD. Dr. James Eckman describes how he has implemented physician extenders to engage non-physicians in important care roles. Shauna Whisenton provides the perspective of someone living with SCD regarding how community health workers provide care. Dr. Sophie Lanzkron explains how a hub and spoke model supports providers and their teams so that all individuals can access high-quality care. Learn more by reading through the resources in the list below.

• ASH Sickle Cell Disease Initiative - https://www.hematology.org/advocacy/sickle-cell-disease-initiative
• ASH Research Collaborative - https://www.ashresearchcollaborative.org/s/
• ASH SCD guidelines for management of acute and chronic pain - https://ashpublications.org/bloodadvances/article/4/12/2656/460974/American-Society-of-Hematology-2020-guidelines-for
• American College of Emergency Physicians managing sickle cell disease in the ED point-of-care tool - https://www.acep.org/sickle-cell/
• ASH Minority Recruitment Initiative - https://www.hematology.org/awards/minority-recruitment
• International Association of Sickle Cell Nurses and Professional Associates - https://www.iascnapa.org/#:~:text=Our%20association's%20mission%20is%20to,cell%20disease%20through%20advocacy%2C%20standardized

Music: "Envision" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/