Home Is Where the Care Is

Bringing Sickle Cell Disease to Life

Researchers, patients, and providers discuss the importance of a quality “medical home” for people living with sickle cell disease (SCD). ASH Research Collaborative Community engagement Manager Shauna Whisenton, an SCD warrior, describes the benefits she experienced once she found a medical home. SCD experts share their experiences creating treatment centers. Dr. James Eckman explains how he gained support and funding to develop one of the first infusion clinics for individuals living with SCD. Drs. JJ Strouse and Dr. Sophie Lanzkron describe their experiences developing sickle cell disease centers like medical homes that can coordinate the complex care needed by people living with SCD. Learn more by reading through the resources in the list below.

• ASH Sickle Cell Disease Initiative - https://www.hematology.org/advocacy/sickle-cell-disease-initiative
• ASH Research Collaborative - https://www.ashresearchcollaborative.org/s/
• ASH SCD guidelines for management of acute and chronic pain - https://ashpublications.org/bloodadvances/article/4/12/2656/460974/American-Society-of-Hematology-2020-guidelines-for
• American College of Emergency Physicians managing sickle cell disease in the ED point-of-care tool - https://www.acep.org/sickle-cell/
• ASH Minority Recruitment Initiative - https://www.hematology.org/awards/minority-recruitment

Music: "Envision" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/